RESOURCES FOR LONG-TERM RECOVERY
AND INDEPENDENT LIVING
The largest caregivers/case managers/independent living directory on the internet
Purpose and Objective of the Directory
The purpose
of the Self Help Resources directory is to identify free and affordable resources for recovery from
brain injury and other catastrophic illness. Websites are
included in the directory based on referrals and recommendations made
by users and consumers of the resources for long-term recovery. Recommendations for websites to be included in
the Directory should be sent to:
selfhelprecovery@usa.net.
Websites
establishing a reciprocal link with the Caregivers Directory may
add information to their Directory listing by
sending an email to
selfhelprecovery@usa.net.
The main focus of the caregivers directory is on the "post-rehabilitation (T3)"
or long-term phase
of recovery which, in the case of head injury, can take up to 20 years. A 1998 Nationa Institutes
of Health “Consensus Development Conference” on the topic Rehabilitation of
Persons with Traumatic Brain Injury found that
most approaches to TBI rehabilitation involve a traditional
medical perspective. The conference concluded that “A
major limitation within the field of TBI rehabilitation is the narrow focus of
current medical restoration approaches [and] There is little recognition that
TBI is frequently a lifetime disability with varying rehabilitation needs over
that lifetime.
The conference found that “major financial barriers make access to TBI rehabilitation services difficult for many individuals.”
. . . current approaches frequently result in a sense of disenfranchisement due to a lack of shared participation in goal development and program design. In addition, information provided by clinicians to persons with TBI and their families is often insufficient.
The conference views apply as well to closed-head injury (acquired brain injury) and catastrophic illness in general.
For a summary of the conference statement go to Recovery--Part II, Rehabilitation. For the complete NIH conference statement go to http://consensus.nih.gov/1998/1998TraumaticBrainInjury109html.htm
All of the
listings in this directory are linked to their
corresponding
websites. After visiting a website, press the back button
to return to the
Directory.
____________________________________________________________________
NEW LISTINGS
Disabilities in Basic
Life Activities
Disability Statistics Abstract
dsc.ucsf.edu/view_pdf.php?pdf_id=1
Index
Go to subject listings by
clicking
on red letter link.
A
Accreditation and Certification
Acquired Brain Injury
Advocacy
● Child Advocacy
● Health
● Women
Aging
Alzheimer's Disease
Aneurysm
Anoxia/Hypoxia
Aphasia
Assessment, Testing
Assistive Technologies
B
Boating (power boating and sailing)
Brain
Brain Cancer
Brain and Central Nervous System Disorders
Brain Damage from Alcohol and Drug Use
Brain Studies
Brain Tumor
C
Caregiving, Caregiver Resources
Caregiver Training
Charitable Organizations
Case Management in Home
Chemobrain
Children’s Resources
Clinical Trials
Comedy and Entertainment
Complementary and Alternative Medical Research and Treatment
Complementary and Alternative Medicine Information
Computer Applications
D
Dementia
Depression
Developmental Disabilities
Discounts and Promotions
Diagnosis and Treatment
Disabilities
E
Education
● College Courses/Distance Learning
● College Programs for Students with Disabilities
● Educational Programs
● Educational Software
● Internet Learning
Employment Opportunities
● Job Searching Over 50
● Seasonal Jobs
● Self Employment
● Volunteer Opportunities
Epilepsy
F
Family Development
Financial Assistance for People With Disabilities
● County Health Department
Financial Assistance for Prescription Drugs
Financial Benefits--Government
Financial Services
Fitness, Physical Therapy and Exercise
Freebies on Line
● Free Books
G
Games and Puzzles
Grieving
Gulf War Syndrome
H
Headache
Health and Advocacy
Health Newsletters
Healthcare References
Home Healthcare Support
Hospice, Death and Dying
Hospitals
I
Income development, Grants and
business startup
Incontinence
Independent Living
●Centers
●Resources
Internet Shopping
J
Job Training
L
Law
● Durable Power of Attorney
Leukodystrophy
M
Magazines and Newsletters--websites
Massage
Medical Diagnosis and Treatment
Medical Referrals
Medical Records
Medical Tests
Medicare
Memory Enhancement
Mental Health
Money Matters
Motor Neuron Disease
N
Neurology
Neurorehabilitation
News about Head Injury Recovery
Nursing
Nursing Homes
Nutrition and Health
P
Parkinson's Disease
Partnership Between Patient and Caregiver
Personal Assessment Tests
Physical Therapy
Prescription Drugs
Physical Training and Sports
Psychology and Counseling
R
Rehabilitation and Recovery
Rehabilitation and Recovery Programs
Recreation
Relocation Resources
Research Reports
S
Self Help
Senior Resources
Social Security
Stroke
Support Groups and
Communication Online
Surgical Procedures
T
Taxes
Technology
Telephone Directories
Thanatology
Therapy
Tourette Syndrome
Training
Transmissible Spongiform Encephalopathies
Traumatic Brain Injury
Travel
● Extended Stay Hotels/Motels
● Farm Vacations
● Hospitality Exchange
● House Swapping
V
W
Wellness
Women’s Issues
_________________________________________________________________________________
Directory Listings
Accreditation and Certification
Commission on Accreditation of Rehabilitation Facilities
http://www.carf.org/default.aspx
The
Joint Commission on Accreditation of Healthcare Organizations
http://www.jcaho.org/
National Association of Boards of Pharmacy (Reviews and approves pharmacy
websites)
www.nabp.net
The National Committee for Quality Assurance (NCQA)
http://www.ncqa.org/index.htm
Acquired Brain Injury
A
neurological condition, Acquired Brain Injury (ABI) is damage to
the brain after birth. It usually affects cognitive, physical, emotional or
independent functioning and can result from traumatic brain injury (i.e.
accidents, falls, assaults, etc.) and non-traumatic brain injury (i.e. stroke,
brain tumours, infection, poisoning, hypoxia, ischemia or substance abuse). Most
definitions of ABI exclude neurodegenerative disorders. Acquired brain injury is
not to be confused with intellectual disability. People with a brain injury may
have difficulty controlling, coordinating and communicating their thoughts and
actions but they usually retain their intellectual abilities. Brain injury has
dramatically varied effects and no two people can expect the same outcome or
resulting difficulties. The brain controls every part of human life: physically,
intellectually, behaviorally and emotionally. When the brain is damaged, some
other part of a person's life will also be adversely affected. Even a mild
injury can result in a serious disability that will interfere with a person’s
daily functioning and personal activities for the rest of their life. While the
outcome of the injury depends largely on the nature and severity of the injury
itself, appropriate treatment will play a vital role in determining the level of
recovery.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Acquired_brain_injury
Brain
Injury Association of Queensland
Fact Sheets
http://www.biaq.com.au/factsheets.htm
Advocacy
AARP--Issues and Elections
http://www.aarp.org/issues/
American Bar Association (pro bono legal services)
www.abanet.org/soc/probono/pip.html
ABA--state directory of programs
www.abanet.org/legalservices/probono/directory.html
American Civil Liberties Union (legal services)
www.aclu.org
American with Disabilities Act
http://www.usdoj.gov/crt/ada/adahom1.htm
ADA—Document Center
http://janweb.edu
Center for Medicare Advocacy, Inc (legal assistance for elderly and disabled
people who have been denied coverage—free to Connecticut residents, fee required
for others)
www.medicareadvocacy.org
The Arc of the United
States
http://www.thearc.org/
The Center for Patient Advocacy (counseling and publications on patients rights)
800-846-7444
www.patientadvocacy.org
Congress of the US (help with cases and actions in government agencies)
www.house.gov or
www.senate.gov.
HALT: Americans for Legal Reform (Legal self-help)
http://www.halt.org/index.php
·
Child Advocacy
Wrightslaw
www.wrightslaw.com
● Health Insurance Counseling and Advocacy Program (HICAP)
Centers for Medicare
& Medicaid Services. Check with your state Department on Aging, State Insurance
Commissioner’s office or the Eldercare Locator hotline: 800-677-1116
The Judge Bazelon Center for Mental Health Law
www.bazelon.org
Leapfrog Group (Evaluation of hospital standards of treatment and billing)
www.leapfroggroup.org
Legal Services Corporation (free legal advice and assistance)
www.lsc.gov
e-mail:
info@lsc.gov
state locator:
www.lssc.gov/fundprog.htm
National Association for Homecare
www.nahc.org
National Patient Safety Foundation
http://www.npsf.org/
National Self-Help Clearinghouse (referrals to self-help groups nationwide)
www.selfhelpweb.org
Office of the Federal Privacy Commissioner, Federal Privacy Law
http://www.privacy.gov.au/act/
People's Medical Society
www.peoplesmed.org
Public Citizen Health Research Group
www.citizen.org/hrg/
Quackwatch
www.quackwatch.com
The Agency for Healthcare Research and Quality (help yourself avoid medical
injuries)
www.ahrq.gov/consumer/20tips.htm
● State Insurance Commissioner (your state): Health insurance disputes, State
Medical Board (your state): Medical service disputes including billing
Consumers Union—Getting Action: How to Petition Government and Get Results
www.consumersunion.org
Aging
U.S
Department of Health and Human Services, Administration on Aging
http://www.aoa.dhhs.gov/
American Federation for Aging Research
www.infoaging.org
Aging Solutions Inc: Elder Care and Advocacy Services
www.eldercarehelp.com
Alzheimer’s
Disease
Alzheimer’s
Disease (AD), also known simply as Alzheimer’s, is a neurodegenerative disease
characterized by progressive cognitive deterioration together with declining
activities of daily living and neuropsychiatric symptoms or behavioral changes.
It is the most common type of dementia.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Alzheimer%27s_disease
The Alzheimer’s Store
www.alzstore.com
Alzheimer’s Society
www.alz.org
Alzheimers
Caregiver Resources
www.alzheimerscaregiverresources.com
Fisher
Center for Alzheimer Research Foundation
http://www.alzinfo.org/
The Forgetting
http://www.randomhouse.com/features/forgetting/caregiver.html
National Institute on
Aging
http://www.nia.nih.gov/Alzheimers/Publications/resourcelist.htm
Aneurysm
An aneurysm
(or aneurism) is localized, blood-filled dilation (bulge) of a blood vessel
caused by disease or weakening of the vessel wall. Aneurysms most commonly
occur in arteries at the base of the brain (the circle of Willis) and in the
aorta (the main artery coming ut of the heart)—this is an aortic aneurysm. This
bulge in a blood vessel can burst and lead to death at any time, buch like a
bulge in an over-inflated innertube. The larger an aneurysm becomes, the more
likely it is to burst.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Aneurysm
Aneurysm information
http://www.columbia.edu/~mdt1/
Aneurysm support and message board
http://www.westga.edu/~wmaples/aneurysm.html
Brain-Aneurysm.com
http://www.brain-aneurysm.com/
Brain-Surgery.us
http://www.brain-surgery.us/index.html
Brain Aneurysm Foundation
http://www.bafound.org/index.htm
Anoxia/Hypoxia
Hypoxia is
a pathological condition in which the body as a whole (generalised hypoxia) or
region of the body (tissue hypoxia) is deprived of adequate oxygen supply.
Hypoxia in which there is complete deprivation of oxygen supply is referred to
as anoxia.
--Wikipedia, the free encylopedia
http://en.wikipedia.org/wiki/Anoxia
Aphasia
Aphasia (or
aphemia) is a loss or impairment of the ability to produce and/or comprehend
language due to brain damage.
--Wikipedia,
the free encyclopedia
http://en.wikipedia.org/wiki/Aphasia
American Speech-Language-Hearing Association
http://www.asha.org/public/speech/disorders/Aphasia_info.htm
National Aphasia Association
http://www.aphasia.org/
Stroke Family Speech
Recovery Kits
http://www.strokefamily.org/
Assessment, Testing
Positive
Psychology Network
Evaluation of psychological strengths
www.authenntichappiness.org
Information on interpreting test results
www.labtestsonline.org
Assistive Technologies
Brain Injury Association of America (Assistive Technologies)
http://www.biausa.org/Pages/AT/
Wireless Foundation (for used cell phones)
www.wirelessfoundation.org
Associations
International Brain Injury Association
http://www.internationalbrain.org/index.php
B
Boating
Sailing Aboard Recovery Foundation
www.sailrecovery.org
Chesapeake Region Accessible Boating
http://www.crab-sailing.org/
Brain
Brain function and products for
performance enhancement
www.brain.com
Brain Cancer
Medline Plus
http://www.nlm.nih.gov/medlineplus/braincancer.html
Brain and Central Nervous System Disorders
Parkinson’s, Alzheimer’s and other brain-centered diseases
http://www.brainnet.org/
Brain
Damage from Alcohol and Drug Use
Brain damage
is a common and potentially severe consequence of long-term, heavy alcohol
consumption. Even mild-to-moderate drinking can adversely affect cognitive
functioning.
--About: Alcoholism and Substance Abuse—For more coverage:
http://alcoholism.about.com/od/brain/Brain_Damage_and_Alcohol_Consumption.htm
Brain Injury
Acquired brain injury
http://www.methodisthealth.com/rehab/braininj.htm
Acquired brain injury information
http://www.headwest.asn.au/infokit.htm
Brain Injury Association of
America
http://www.biausa.org/Pages/home.html
Brain
Injury Society
http://www.bisociety.org/
Brain Injury Resource Center
http://www.headinjury.com/
Medline
Plus--health information
http://www.nlm.nih.gov/medlineplus/headandbraininjuries.html
Mental health
http://www.mentalhelp.net/
University of Iowa
Virtual Hospital
http://www.vh.org/adult/patient/neurosurgery/braininjury/index.html
American Brain Tumor Association
http://www.tbiguide.com/
Brain Plasticity
Brain Gym
http://www.braingym.org/about.html
Vanderbilt Kennedy
Center for Research on Human Development
http://kc.vanderbilt.edu/kennedy/research/topics/plasticity.html
Posit Science
http://www.positscience.com/
Brain Studies
The Cerebral Institute of Discovery
www.cerebral.org
Neurological studies
www.cnsonline.org
Brain Tumor
A brain
tumor is any inracranial tumor created by abnormal and uncontrolled cell
division, normally either found in the brain itself (neurons, gllial cells,
astrocytes, oligodendrocytes, ependymal cells), lymphatic tissue, blood vessels;
in the cranial nerves (myelin-producing Schwann cells); in the brain envelopes (meninges),
skull, pituitary and pineal gland; or spread from cancers primarily located in
other organs (metastic tumors). Primary (true) brain tumors are commonly
located in the posterior cranial fossa in children and in the anterior
two-thirds of the cerebral hemispheres in adults, although they can effect any
part of the brain.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Brain_tumor
American
Brain Tumor Association
http://hope.abta.org/site/PageServer
Pediatric
Brain Tumor Association
http://www.pbtfus.org/
National
Brain Tumor Foundation
http://www.braintumor.org/
Brain-Surgery.us
http://www.brain-surgery.us/
The Brain
Tumor Foundation
http://www.braintumorfoundation.org/
Brain Tumor Society
http://www.tbts.org/
Brain Tumor Association
www.abta.org
Pediatric
Brain Tumor Association
http://www.pbtfus.org/
Business Assistance and Information
Small business
information
www.entrepreneur.com
C
Cancer
Memorial Sloan-Kettering Cancer Center
www.mskcc.org
Oncolink, University of Pennsylvania Cancer Center
www.oncolink.upenn.edu
Caregiving, Caregiver Resources
Administration on Aging
http://www.aoa.gov
Brownson's Nursing Notes
http://members.tripod.com/~DianneBrownson/passages.html
Caregiver Resource Centers
California Department of Mental Health
http://www.dmh.cahwnet.gov/CRC/default.asp
Center to Advance Palliative Care
http://www.capc.org/finding-palliative-care-services/
Family Caregiver Alliance
http://www.caregiver.org/caregiver/jsp/home.jsp
Hospice Center International, Caregiver
Resources
http://hospiceinternational.com/caregiver.htm
Lotsa Helping Hands
http://www.lotsahelpinghands.com/
National Alliance for Caregiving
http://www.caregiving.org/
National Family Caregivers Association
http://www.nfcacares.org/
National Caregivers Library
www.caregiverslibrary.org/
Net of Care: Information and Resources for Caregivers
www.netofcare.org
National Parkinson Foundation:
Caregivers' Forum
www.parkinsonscare.com
Senior Approved Services
http://www.seniorsapprove.com/caregivers.html
WebMD
http://www.webmd.com/solutions/sc/caregiving
Caregiving Locator
Caregivers-USA
http://caregivers-usa.org/
Caregiving Resources
…And Thou Shalt Honor
http://www.thoushalthonor.org/
Christopher and Dana Reeve Paralysis Resource Center
www.paralysis.org
National Family Caregiver Support Program
http://www.aoa.gov/prof/aoaprog/caregiver/caregiver.asp
Everyday Warriors
www.everydaywarriors.com
The International Center for Disability Resources on the Internet
www.icdri.org
National Family Caregiver Association
http://www.thefamilycaregiver.org
The
National Private Duty Association (NPDA)
www.privatedutyhomecare.org
Resources for Caregivers
http://www.makoa.org/caregiver.htm
Caregiver’s Resource
http://www.caregiversresource.com/index.htm
Well Spouse Foundation
www.wellspouse.org
Working Caregiver
www.workingcaregiver.com
Case
Management
●Aging
National Association of Geriatric Care Managers
http://www.caremanager.org/
● Health Care
Visiting Nurse Associations of America
http://www.vnaa.org/vnaa/g/?h=html/home
●
Social Work
National
Association of Social Workers
In
thousands of ways, social workers help people help themselves.
http://www.helpstartshere.org/home.html
Caregiver Training
Center for Caregiver Training
http://www.caregiving101.org/index.asp
The Home Care Companion
http://www.homecarecompanion.com/
CareGuide
http://www.coordinatedcare.com/Careguide/index.jsp
Caregiving
www.caregiving.com
AARP, Caregiving
http://www.aarp.org/families/caregiving/
Centers for Medicaid and Medicare Services
http://cms.hhs.gov
Communicating with kids
Public Broadcasting System
www.pbs.org/parents
Family Caregiver Alliance
www.caregiver.org/
National Alliance for Caregiving (Independent Caregiver Directory)
www.caregiving.org
National Association for Homecare
www.nahc.org
National Family Caregivers Association
http://www.nfcacares.org/
Web resources for caregivers
www.caregiver.org
Partnership for Caring
202-296-8071
www.partnershipforcaring.org
Case Management and
Consulting
Expert information
www.allexperts.com
Charitable Organizations
Nonprofit organizations rated acceptable by the Better Business Bureau
Wise Giving Alliance
www.give.org
Alzheimer's Association
www.alz.org
American Brain Tumor Association
(formerly: Association for Brain Tumor Research)
www.abta.org
American Health Assistance Foundation
www.ahaf.org
American Heart Association/American Stroke Association
www.americanheart.org
Brain Tumor Foundation of America/National Brain Tumor Foundation
www.braintumor.org
Epilepsy Foundation
www.epilepsyfoundation.org
National Alliance for Autism Research
www.naar.org
National Alliance for Research on Schizophrenia and Depression
www.narsad.org
NAMI/National Alliance for the Mentally Ill
www.nami.org
National Parkinson Foundation
www.parkinson.org
Parkinson's Disease Foundation
www.pdf.org
Chemobrain
http://www.breastcancer.org/chemo_cognitive.html
Right Health
http://www.righthealth.com/health/chemo--brain-s
Researchers
Verify ‘Chemo Brain’ in Cancer Survivors
American Cancer Society
http://www.cancer.org/docroot/NWS/content/NWS_1_1x_Researchers_Verify_%E2%80%98Chemo_Brain%E2%80%99_in_Cancer_Survivors.asp
Children’s Resources
Animaland
www.animaland.org
BrainEvent
www.brainevent.com/be
Cartoon Network
www.cartoonetwork.com
The Children’s Literature Web Guide
http://www.ucalgary.ca/~dkbrown/index.html
Cyberhaunts for Kids
www.freenet.hamilton.on.ca/-aa937/profile
Cyberkids
www.cyberkids.com
Dr. Seuss, Seussville
www.randomhouse.com/seussville
Fun Brain
www.funbrain.com
International Resources for Special Children
www.irsc.org
Kaitlyn’s Knock-Knock Jokes and Riddles
http://www.geocities.com/kaitlynbayne/jokes.htm
Kids Health
www.kidshealth.org
Starbright Foundation
www.starbright.org
Traumatic Brain Injury in Infants and Toddlers
http://barkley.uni.edu/tbi
VICNET
www.vicnet.net.au/vicnet/kids/youthnet.htm
Volcano World
www.volcano.und.nodak.edu
Wild World of Wonka
www.wonka.com
Youth and Children’s Resource
www.child.net
Clinical Trials
NIH Protocols, Linking Patients to Research
http://www.clinicaltrials.gov/
National Institutes of Health, National Library of Medicine www.Clinicaltrials.gov
Comedy and Entertainment
Comedy
Central
www.comedycentral.com
The Internet Movie Database
www.imdb.com
Movie Clichés List
www.moviecliches.com
Complementary and Alternative Medical Research and Treatment
Bastyr
University
www.bastyr.edu
Beth
Israel Medical Center,
NY
www.healthandhealingny.org
Harvard
University, Osher Center for alternative Medicine Research and Education
www.bidmc.harvard.edu/medicine/camr
Minneapolis Medical Research Foundation, Center for Addiction and Alternative Medicine Research (CAAMR) www.mmrffweb.org/caamrpages
Münchener Modell
www.lrz-muenchen.de
Research Council for Complementary Medicine (RCCM) www.gn.apc.org/rccm
Stanford University, Center for Research in Disease Prevention, Complementary
and Alternative Medicine Program at Stanford (CAMPS)
www.camps.stanford.edu
University of California Irvine,
Susan Samueli Center for Complementary and Alternative Medicine
www.ucihs.uci.edu/com/samueli
University of California San Francisco,
Osher Center for Integrative Medicine
www.ucsf.edu/ocim
University of Texas
M.D. Anderson Cancer Center Complementary Therapy Reviews
www.mdanderson.org
Complementary and Alternative Medicine Information
Canadian Natural Health Products Directorate
www.hc-sc.gc.ca/hpb/onhp/welcome_e.html
National Cancer Institute, Office of Cancer and complementary and Alternative
Medicine
www.cancer.gov/occam/
National Cancer Institute, clinical trials
www.nci.nih.gov/
Health Well
www.healthwell.com
The National Center for Complementary and Alternative Medicine (NCCAM)
www.nccam.nih.gov/
National Institutes of Health, Clinical Trials, Alternative Medicine
www.clinicaltrials.gov/
New York Online Access to Health
www.noahhealth.org
Prevention Magazine
http://Healthyideas.com
The
Rosenthal Center
www.cpmcnet.columbia.edu/dept/rosenthal/
The
University of
Pittsburgh
www.pitt.edu/~cbw/internet.html
The Homeopathic Academy of Naturopathic Physicians
www.healthy.net/hanp
American Association of Naturopathic Physicians
www.naturopathic.org
Mind/Body Medical Institute
866-509-0732
www.mbmi.org
National Institutes of Health Office of Dietary Supplements
301-435-2920
http://dietarysupplements.info.nih.gov
Computer Applications
Access
Quality Toys Birthday Reminder
www.accessqualitytoys.com/birthday.cfm
Accesing the Internet
www.faqs.org/faqs/internet-services
Free E-Mail Address (and other services) Directory
www.emailaddresses.com
Remind Me!
www.cartsupport.com/admin/reminders.asp
Talking Email
www.4developers.com/talkmail/
Cooking
Cooking by
Numbers: begins by asking what you have on hand
www.cookingByNumbers.com
D
Dementia
Dementia and other diseases review
www.thedoctorslounge.net
Mental
health resources
http://www.mentalhelp.net/
Depression
Dealing with depression
www.depress.com
Depressed Child
www.depressedchild.org
Depression
www.depression.org
Depression, Symptoms and Treatments www.members.aol.com/ckrps/healthllynx/depression.html
Depression Alliance
www.depressionalliance.org
Depression and Anxiety
www.emedchart.com
Depression Awareness
www.familyaware.org
Depression Help
www.helpdepression.com
Depression Net
www.depressionnet.com.au
Depressive illness
www.cyberview-usa.com
National Depressive and Manic-Depressive Association
www.ndmda.org
Developmental Disability
Developmental disability is a term used to describe severe, life-long
disabilities attributable to mental and/or physical impairments, manifested
before the age of 22. …Usually people with mental retardation, cerebral palsy,
autism spectrum disorder, various genetic and chromosomal disorders such as Down
syndrome and Fragile X syndrome, and fetal alcohol syndrome are described as
having developmental disabilities.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Developmental_disabilities
US Department of Health and Human Services
Administration for Children & Families
http://www.acf.hhs.gov/programs/add/
National Center on Birth Defects and Developmental
Disabilities
http://www.cdc.gov/ncbddd/
Diagnosis and Treatment
AARP
LifeAnswers (professional consultation on health issues)
www.aarp.org/lifeanswers
Best Neuroscience Website
http://uscneurosurgery.com/links/best_neuroscience_links.htm
Electro diagnostic Medicine
www.aaem.net
Neurosurgery
www.neurosurgery-neff.com
Canadian Neurological
www.cjns.org
Deep vein thrombosis (DVT)
http://www.dvt.net/
Glasgow Coma Score
http://www.trauma.org/scores/gcs.html
Nerve
injury
www.nerve-injury.com
Neural signals
www.neuralsignals.com
Neurology
www.neurology.org
Brain Helper
http://www.brainhelper.com/
MRI screening
http://www.brainscans.com/
Health Evidence Bulletins
http://hebw.uwcm.ac.uk/mental/chap3.html
Dementia and other diseases review
www.thedoctorslounge.net
Postgraduate Medicine Online
http://www.postgradmed.com/index.htm
Medical checklist of procedures http://www.anesthesia.lsumc.edu/Neuro/Manual/aneurysm.htm
Medline information encyclopedia
http://www.nlm.nih.gov/medlineplus/ency/article/003019.htm#Definition
Trauma, emergency and intensive care neurosurgery index
http://www.bgsm.edu/bgsm/surg-sci/ns/trauma.html
Wake Forest
University Baptist Medical Center
http://www.bgsm.edu/
Disabilities
DisabilityInfo.Gov
http://www.disabilityinfo.gov/
US
Department of Education
http://www.ed.gov/offices/OSERS/
Yourable.com—Products and services for people with disabilities
www.disabilitynet.co.uk/
An online community for people with disabilities of all types
www.icanonline.net/
Learning Disabilities Association of America
www.idanatl.org
E
Education
College Costs
article BLP, November 1, 2006
National Institute of Certified College Planners
www.niccp.com
● Programs for Students with Disabilities
Aish HaTorah, Jewish
educational centers (BLP)
www.aish.com
Association on Higher Education and Disability
www.ahead.org/
Community Colleges
www.search4communitycolleges.com
Brains are Fun
www.brainsarefun.com/
●
Internet Learning
The Sloan Consortium (500 leading US colleges and universities)
www.sloan-c.org
World Wide Learn (directory)
www.worldwidelearn.com
● Search course description on-line
Middle States Commission on Higher Education
215-662-5606
www.msache.org
The Higher Learning Commission of the North Central Association of Colleges and
Schools
312-263-0456
www.ncahigherlearningcommission.org
Northwest Commission on Colleges and Universities
425-558-4224
www.nwccu.org
Southern Association of Colleges and Schools
404-679-4500
www.sacscoc.org
Western Association of Schools and Colleges
415-506-0234
www.accjc.org
● Educational Programs
Summer educational programs
www.petersons.com/summerop
· Educational
Software
Braintainment Center
www.brain.com
Brain Train
www.brain-train.com
AARP
www.aarp.org/nrta/learning
Barnes & Noble
University
www.barnesandnobleuniversity.com
Educational References
Bartleby.com -- Great
Books Online
www.Bartleby.com
Employment
Opportunities
● At-Home Employment
● Job Search
http://www.vocationvacations.com/
● Job
Searching Over 50
Pathways/OI
Partners--Professional effectiveness
www.oipartners.net/pathways
American Camping Association
Summer and Year-round Jobs
http://www.acacamps.org/
AARP—list of top companies for older workers
www.aarp.org/bestemployers
www.aarp.org/careers
US Administration on Aging
www.aoa.gov
US Equal
Employment Opportunitiy Commission
www.eeoc.gov
Guide to career resources
www.job-hunt.org
Seasonal Employment
www.coolworks.com
SummerJobs.com
www.summerjobs.com
● Self Employment
National Association of Real Estate Investors
www.nationalreia.com
Angel Investors
http://www.angelcapitaleducation.org/
● Volunteer Resources
Random Acts of Kindness
www.actsofkindness.org
Volunteer opportunities
www.aarp.org
Volunteer Match (clearinghouse)
www.volunteermatch.org
Volunteer
America
(clearinghouse)
www.volunteeramerica.net
Global Volunteers (clearinghouse)
www.globalvolunteers.org
The Time Dollar Institute
www.timedollar.org
Epilepsy
Epilepsy Foundation
www.efa.org/
F
Family Development
Family fun
www.funology.com
Financial Assistance
for People with Disabilities
American Camping Association
Camperships (scholarships)
http://www.acacamps.org/
The Abilities Fund
www.abilitiesfund.org
American Academy of Ophthalmology
National Eye Care Project (65 and older)
www.aao.org
American Optometric Association, VISION USA
www.aoanet.org
Lions Clubs International Foundation
www.lcif.org
American Cancer Society
www.cancer.org
Easter Seals
www.easterseals.org
Benefits checkup--provides a summary of about 1,000 national and local benefits
programs. Sponsored by the National Council of the Aging with support from
AARP, drug companies and others.
http://www.benefitscheckup.org/
Catholic Charities USA (child care, elder care, etc.)
www.catholiccharitiesusa.org
Children’s Health Insurance Program (CHIPS) (free health insurance)
877-543-7669 (hotline state locator)
www.insurekidsnow.gov
County Health Department (your county): free or partial payment health services based on ability to pay.
Disability Rights Education and Defense Fund, Inc (DREDF) (hotline)
www.dredf.org
Federal Citizen Information Center
www.firstgov.gov
Health Resources and Services Administration, US Department of Health and Human
Services—Hill-Burton Hotline (free hospitalization)
800-638-0742, 800-492-0359
www.hrsa.gov/osp/dfcr/about/aboutdiv.htm
Medicaid (free health insurance for people with disabilities who work) or
Medicare Hotline: 800-633-4227
www.medicaid.gov
Medicare (supplemental payment, see Guide to Health Insurance for People With
Medicare) or Medicare Hotline: 800-633-4227
www.medicare.gov/publications/pubs/pdf/guide.pdf
National Foundation of Dentistry for the Handicapped (free dental care) (also
check local dental school programs)
www.nfdh.org
National Immunization Information Hotline (free immunizations)
800-232-0233
www.cdc.gov/nip
National Institutes of Health Clinical Center (patient recruitment)
www.cc.nih.gov
Computer Retrieval of Information on Scientific Projects, Office of Reports and
Analysis, Division of Extramural Outreach and Information Resources
www.commons.cit.nih.gov/crisp or 301-435-0656
Octameron Associates (Federal student loan and grant finder)
www.octameron.com
Office of Housing Assistance and Grants Administration, US Department of Housing
and Urban Development (funds for housing for people with disabilities, program
14.157)
www.hud.gov
● Office of Vocational Rehabilitation or Office of Economic Development (state)
Pharmaceutical Research and Manufacturers of America (hotline) www.pharma.org or 800-PMA-INFO
Rehabilitation Engineering and Assistive Technology (technical assistance and
financial support)
www.resna.org
Rehabilitation Services Administration, US Department of Education (grants to businesses that employ people with disabilities) www.ed.gov/offices/OSERS/RSA
Rural Housing Service, US Department of Agriculture (buy or fix up a home)
www.rurdev.usda.gov/rhs/index.html
State and local Rural Housing Service offices
www.nahro.org and
www.comcon.org
Salvation Army (help with child care, elder services, etc.) www.Salvationarmyusa.org
Social Security Administration (Supplemental Security Income (SSI); Social
Security Disability Income (SSDI)
http://www.ssa.gov/
State information offices (insert state abbreviation)
www.state.md.us
Financial Assistance for Prescription Drugs
Medicare—State Assistance Programs
800-633-4227
www.medicare.gov
Veterans Health Administration
Department of Veterans Affairs
877-222-8387
www.va.gov
Medicare
Rights Center—list of drug discount programs
www.medicarerights.org
Internet pharmacies and prices
www.destinationrx.com
Financial Benefits--Government
Your Benefits Connection [to federal and state government]
http://www.govbenefits.gov/govbenefits_en.portal
Financial Resources for Seniors
Department of Housing and Urban Development (HUD)
http://www.hud.gov/groups/seniors.cfm
Reverse Mortgage
http://www.reversemortgagelenders.org/
Financial Services
American Association of Daily Money Managers
www.aadmm.com
Pay Trust,
Complete Bill Management
www.paytrust.com
Status Factory, pay
bills online
www.statusfactory.com
National Financial
Planning Support Center
Find a planner
www.fpanet.org
Fitness
American Senior Fitness Association
www.seniorfitness.org
National Institute on Aging (exercising for older people)
www.nia.nih.gov/exercisebook
About Walking
www.walking.about.com
Aerobics and Fitness Association
www.afaa.com
Fitness Online
www.fitnessonline.com
Fitness Resource
www.sickbay.com/netsweat/
Muscle Physiology
www.muscle.ucsd.edu
National Institute on Aging
www.aoa.gov//aoa/pages/agepages/exercise.html
World Fitness Online
www.worldfitness.org
Fitness, Physical Therapy and Exercise
Constraint-induced movement therapy
http://www.stroke-info.com/cimt.htm
Constraint-induced
movement therapy--A Clinical Review
http://www.vard.org/jour/99/36/3/taub363.htm
Exercise Council
www.acefitness.org
Shape Up America
www.shapeup.org
Workouts for You
www.workoutsforyou.com
Freebies on
Line
www.bestdealsontheweb.net
● Free
books
www.gutenberg.net
www.digital.library.upenn.edu/books
G
Games and Puzzles
Ariel’s Simpsons Trivia Quiz
www.geocities.com/athens/1530/simmptriv.html
Boxerjam
www.boxerjam.com
Case’s Ladder, Multiplayer Gaming League
www.igl.net
Chinook (checkers)
www.cs.ualberta.ca/-chinook/
The Daily 100 (80s movie trivia) www.80s.com/entertainment/movies/daily100/
FreeArcade
www.12.freearcade.com
GameGeezers
http://www.gamegeezers.com/forum/
MSN Game Zone
www.zone.msn.com
Old Grandma Hard Core
http://oghc.blogspot.com/
The Ultimate Oracle: Pray Before the Head of Bob
www.resort.com/-banshee/misc/8ball/
Welcome to Faces
www.corynet.com/faces/
World Village Games
www.worldvillage.com/wvgames/index.html
WWW Interactive Online Crossword
www.uclick.com/client/pil/ec/
Government Agencies
State and Local Government on the Net
www.statelocalgov.net
Grieving
GriefNet
http://www.griefnet.org/
Thanatological Education and Resource Center
Dedicated to meeting the needs of the dying and the bereaved by providing
academic
and support services to professionals,
volunteers, caregivers, the bereaved and the
community at large.
http://www.tearcenter.com/
Gulf War
Syndrome
Gulf War Syndrome (GWS) or Gulf War Illness (GWI) is the name given to an
illness with symptoms including increases in the rate of immune system disorders
and birth defects, reported by combat veterans of the 1991 Gulf War. It has not
always been clear whether these symptoms were related to Gulf War service.
Symptoms attributed to this syndrome have been wide-ranging, including chronic
fatigue, loss of muscle control, migraines and other headaches, dizziness and
loss of balance, memory problems, muscle and joint pain, indigestion, skin
problems and shortness of breath. Brain cancer deaths, amyotrophic lateral
sclerosis (Lou Gehrig’s disease) and fibromyalgia are now recognized by the
Defense and Veterans Affairs departments as potentially connected to service
during the Persian Gulf War.
Wikipedia, the free
encyclopedia
http://en.wikipedia.org/wiki/Gulf_War_syndrome
National Gulf War Resource Center
http://www.ngwrc.org/
U.S. Department of Veterans Affairs
Research Advisory Committee on Gulf War Veterans’ Illnesses
http://www1.va.gov/rac-gwvi/
H
Headache
Headache is a condition of pain in the head; sometimes neck or upper back pain
may also be interpreted as a headache. It ranks amongst the most common local
pain complaints. Headaches have a wide variety of causes ranging from eye
strain, sinusitis, migraine [, concusion,] and tension to life-threatening
conditions such as encephalitis, meningitis, cerebral aneurysms and brain
tumors.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Headache
American Council for Headache Education
http://www.achenet.org/
International Headache Society
http://www.ihs-classification.org/en/
National
Headache Foundation
http://www.headaches.org/consumer/educationindex.html
Health Care
c-online.com/Remedies/Heart/stroke_effects-disabilities.htm
American Health Care Association
http://www.ahca.org/
Health Care Information Resources
http://www-hsl.mcmaster.ca/tomflem/top.html
Health and Advocacy
Center for Women Policy
Studies
An independent, national, multiethnic, and multicultural feminist policy,
research, and advocacy institution founded in 1972. Conducts studies and
advocacy on women’s health, poverty and disabilities.
www.CenterWomenPolicy.org
Centers for Disease Control
Office of Women’s Health
http://www.cdc.gov/women/
Center on Human Policy, Law, and Disability Studies
Women and Disabilities
http://disabilitystudies.syr.edu/resources/organizations.aspx
Judge David L. Bazelton Center for Mental Health Law
http://www.bazelon.org/links/nat_advocates.htm
Medline Plus: Women’s Health Topics
U.S. National Library of Medicine
National Institutes of Health
http://www.nlm.nih.gov/medlineplus/womenshealth.html
National Disability Rights Network
http://www.ndrn.org/
The
National Women’s Health Information Center
U.S. Department of Health and Human Services
Office on Women’s Health
http://www.4woman.gov/topics.cfm
Patient
Advocacy Resource
To
assist consumers in becoming advocates for their own health.
http://library.uchc.edu/departm/hnet/advocacy.html
Rehabilitation Institute of
Chicago,
LIFE Center
http://lifecenter.ric.org/index.cgi
Health Newsletters
Harvard Medical School, Harvard Health Publications
www.health.harvard.edu/SHR
Harvard University, Women’s Health Watch
www.health.Harvard.edu
Public Citizen Health Research Group: Health Letter
www.citizen.org/hrg
People’s Medical Society, Newsletter
www.peoplesmed.org
Tufts University Health & Nutrition Letter
www.healthletter.tufts.edu
University of California, Berkeley, Wellness Letter
www.wellnessletter.com
Healthcare References
(see also Part II)
allHealth.com
www.allhealth.com
American Medical Association, Health Insight
www.ama-assn.org
AmericasDoctor.com
www.americasdoctor.com
Centers for Disease Control and Prevention
www.cdc.gov/ncipc/tbi
Centers for Disease Control (medical hoaxes and rumors)
www.cdc.gov/hoax_rumors.htm
Centers for Disease Control and Prevention--Infectious disease updates
www.cdc.gov
Children’s health information
www.kidshealth.org
Combined Health Information Database (CHID)
www.nfdh.org
drkoop.com
www.drkoop.com
eMedicine.com
www.emedicine.com
Federal gateway
www.healthfinder.gov
Food and Drug
Administration (FDA)
www.fda.gov
Harvard Medical
Schools Health Information
http://www.intelihealth.com
Health and Medical
Resources
http://www.esrl.lib.md.us/internet/16
Healthfinder
www.healthfinder.gov
The Health Network
www.thehealthnetwork.com
Health on the Net
Foundation
http://www.hon.ch/
InteliHealth
www.intelihealth.com
Journal of the
American Medical Association
http://jama.ama-assn.org/
KidsHealth
http://www.kidshealth.org/
Mayo Clinic Health
Oasis
www.mayohealth.com or
www.mayoclinic.com
Mayo Clinic
www.mayo.edu
Mediconsult.com
www.mediconsult.com
Medline--National
Institutes of Health
http://www.nlm.nih.gov/
MEDLINEplus health
http://www.nlm.nih.gov/medlineplus/
Medscape
www.medscape.com
Mens health information
www.menshealthnetwork.org
National Cancer Institute
www.cancer.gov
National Center for Health Statistics
www.cdc.gov/nchs
National Women’s Health Information Center, Office on Women’s Health, Department
of Health and Human Services
http://4woman.gov
New England Journal of Medicine
http://content.nejm.org/
OnHealth
my.webmd.com
PubMed—National Library of Medicine, NIH
www.ncbi.nlm.nih.gov
Ten Things to Know About Evaluating Medical Resources on the Web
www.nccam.nih.gov/health/webresources
US Department of Health and Human Services
www.health.gov
University of Iowa, Virtual Hospital
www.vh.org
WebMD
www.webmd.com
Womens health information
www.4woman.gov
World Health Network
www.worldhealth.net
Health/Wellness
LIVESTRONG SurvivorCare (HWHW)
www.livestrong.org
Cancer
Survivors Network, American Cancer Society (HWHW)
www.acscsn.org
The
Wellness Community (HWHW)
www.thewellnesscommunity.org
Crazy
Meds: Guide to psychiatric medication
www.crazymeds.org
Go Ask
Alice! – Health questions and answers, run by
Columbia
University,
Health Promotion Program
www.goaskalice.com
Holistic Medicine for Head Injury
Holistic online.Com
http://www.holisti
Home Healthcare
Support
Centers
for Medicare and Medicaid Services, Hospice Services
http://cms.hhs.gov/medicaid/services/hospice.asp
National Association of Home Care
www.nahc.org
National Association of Social Workers, Online Register of Clinical Social
Workers
http://www.naswdc.org/
Texas
Association for Home Care
www.tahc.org
Visiting Nurse Association
www.vnaa.org
Home
Improvement and Design
Home Envy: Home
improvement
www.homeenvy.com
Hospice, Death and Dying
Children’s Hospice
www.chionline.org
Children’s Hospice International
http://www.chionline.org/
Growth House
http://www.growthhouse.org/
Hospice Foundation of America
www.hospicefoundation.org
Hospice Net
www.hospicenet.org
Hospice Network of Maryland
http://www.hospice.net/
Hospice Patients Alliance
http://www.hospicepatients.org/
Information about hospice services and a national directory http://www.hospiceweb.com/
Growth House
http://www.growthhouse.org/
Hospice Foundation of America
www.hospicefoundation.org
Hospice Net
www.hospicenet.org
International Association for Near-Death Studies
www.iands.org
Michigan State
University, (hospice planning)
www.completingalife.msu.edu
National Hospice and Palliative Care Organization (directory) www.nhpco.org
Completing a Life
www.completingalife.msu.edu
National Hospice and Palliative Care Organization
www.nhpco.org
Partnership for Caring
www.partnershipforcaring.org
Hospitals
Association of American Medical Colleges (teaching hospitals)
www.aamc.org
National
Center for
Hospital Quality
Centers for Medicare & Medicaid Services
www.cms.gov
Centers for Medicare and Medicaid Services –National Voluntary Hospital
Reporting Initiative—Hospital evaluations
www.cms.gov
Consumers Union--Hospital-acquired infections
www.stophospitalinfections.org
I
Income development, Grants and
business startup
Directory for sources of money and assistance
www.lesko.com
Microloan information
http://www.startupjournal.com/
Association for Enterprise Opportunity
http://microenterpriseworks.org
Start-up loans for small business
www.fieldus.org/directory/index.html
Independent
Living
● Centers
Brain
Injury Center
www.jjbic.org
Center for Independent Living
www.cilberkeley.org/
I-Can online community for people with disabilities
http://www.icanonline.net/
National Council on Independent Living (directory of centers)
www.ncil.org/
Professional Thinking Partners
www.ptpinc.org
● Resources
Brain Injury Society
http://www.bisociety.org/
The Brain Injury
Recovery Network
http://www.tbirecovery.org/
Life Skills--Programs, workshops and other resources www.williamslifeskills.com
Incontinence
Simon Foundation for Continence
www.simonfoundation.org/html
Internet
Internet Archive
www.archive.org
J
Job Training
AARP,
Legal Services Network
www.aarp.org/lsn
● (Your state) Commission on Aging and Job Training Partnership (over 55)
US Department of Labor, Office of Job Training Programs http://wdsc.doleta.gov/seniors
The National Network for Women’s Employment
www.womenwork.org
L
Law
AARP--Family, Home and Legal
Legal Services Network, Self-Help Guides
http://www.aarp.org/families/
http://www.aarp.org/families/legal_issues/legal_guides/
Brain Injury Law Office
www.tbilaw.com
ClassActionAmerica
www.classactionamerica.com
Consumer Law Page
http://consumerlawpage.com
DivorceLAWinfo
www.divorcelawinfo.com
ElderWeb
www.elderweb.com
FindLaw
www.findlaw.com
FreeAdvice
www.freeadvice.com
Internet Legal Resource Guide
www.ilrg.com
LawGuru
www.lawguru.com
Laws
www.laws.com
The Legal Resource Directory
www.halt.org
Legal referral (BLP)
www.lawyers.com
Legal View
http://www.legalview.com/
Nolo Press (legal information)
www.nolo.com
Neurolaw
www.neurolaw.com/brain.html
USALAW
www.usalaw.com
US
Department of Justice ADA Homepage
www.usdoj.gov/crt-home.html
WWW Virtual Library-Law
www.law.indiana.edu/v-li
·
Durable Power of Attorney
AARP Legal Services Network—finding a lawyer
www.aarp.org/lsn
All the Law Simplified
www.legalzoom.com
Quicken WillMaker Plus 2004
www.nolo.com
Harvard Health Publications—A Guide to Living Wills and Health Care Proxies
877-649-9457
www.health.harvard.edu/lw
Leukodystrophy
Leukodystrophy refers to a group of disorders characterized by progressive
degeneration of the white matter of the brain. The leukodystrophies are caused
by imperfect growth or development of the myelin sheath, the fatty covering that
acts as an insulator around nerve fibers.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Leukodystrophies
Adrenomyeloneuropathy (AMN) Help
http://www.amnhelp.com/
Leukodystrophy Resources
http://www.joejohnson.net/leukodystrophy_connections.htm
The Stennis
Foundation
http://www.stennisfoundation.org/
The
Stennis Foundation My Space
http://www.myspace.com/stennisfoundation
Life Style
A New Adventure Every Day
www.empowercoach.com
M
Magazines and Newsletters
Bottom Line Newsletters: Personal, Health, Natural Healing, Retirement
http://www.bottomlinesecrets.com/
Consumer Reports
http://www.consumerreports.org/cro/home.htm
Harvard Health Publications
http://www.health.harvard.edu/
Parents Magazine
http://www.parents.com/
Medical Diagnosis and Treatment
American Academy of Family Physicians (self-care flowcharts)
www.familydoctor.org
American Holistic Medical Association
www.holisticmedicine.org
National Center for Complementary and Alternative Medicine (NIH) www.nccam.nih.gov
National Institute on Aging (NIH)
www.nih.gov/nia
National Institute of General Medical Sciences (NIH)
www.nigms.nih.gov
National Institute of Neurological Disorders and Stroke (NIH) www.ninds.nih.gov
Harvard
Medical School and University of Pennsylvania School of Dental Medicine, Expert
information
www.intelihealth.com
Surgery information
www.yoursurgery.com
Medical Records
American
College of Emergency
Physicians
(emergency medical forms)
www.acep.org/index.cfm/pid/14.htm
American Health Information Management Association (health record forms)
www.ahima.org/consumer/index.html
www.medicinenet.com
National Coalition for Adult Immunization (form)
www.nfid.org/ncai/schedules/card
Partnership for Caring (living will, durable power of attorney forms)
www.partnershipforcaring.org/ad.htm
Personal MD (manage your medical records online)
www.personalmd.com
Organ & Tissue Donor Initiative
www.organdonor.gov/signup1.html
WebMD Health (online records)
www.mywebmd
Medical Referral
Best Doctors
www.bestdoctors.com
American Medical
Association
www.ama-assn.org
American Board of Medical Specialties
www.abms.org
Health Grades
www.healthgrades.com
Federation of State Medical Boards
www.docinfo.org
Administrators In
Medicine (AIM)
National Organization for State Medical & Osteopathic
Board
Executive Directors
www.docboard.org
Medical Tests
National Cancer Institute (FDA-certified mammography facility and cancer
screening)
www.nci.nih.gov
American Cancer Society (cancer screening information and recommendations)
www.cancer.org
QuesTest (diagnostic tests online)
www.questest.com
Medicare
Medicare
http://www.medicare.gov
Medicaid
http://cms.hhs.gov/medicaid/default.asp
Medication
Pharmacology Guide
www.neuroskills.com
Medulloblastoma
Medulloblastoma.Org: Patient Support Resources
www.medulablastoma.org
Memory Enhancement
Tools to improve your memory
www.mindtools.com
Money Matters
About--Credit/Debt Management
www.personalcredit.about.com
About Frugality
www.frugalliving.miningco.com
American Association of Daily Money Managers
www.aadmm.com
American Bankruptcy Institute
www.abiworld.org
American Consumer Credit Counseling
www.consumercredit.com
American Debt Management Services
www.americandebt.com
Bankruptcy FAQs
www.nolo.com
CardWeb
www.ramresearch.com
Center for Debt Management
www.center4debtmanagement.com
Cheapskate Monthly
www.cheapskatemonthly.com
Consumer Credit Counseling by Springboard
www.credit.org
Credit411: Credit Reports and Credit Monitoring Online
www.credit411.com
Debt Counselors of America
www.dca.org
Dig Yourself Out of Debt
www.denver.bcentral,com
Dollar Stretcher
www.stretcher.com
entertainment--The Premier Source for Discounts and Promotions
www.entertainment.com
eSmarts Newsletter
www.esmarts.com
Getsmart.com
www.getsmart.com
InfoHQ Online CPA
www.infohq.com/cpa/onlinecpa.htm
iVillage Money: Personal Finance for Women
www.ivillage.com/money/
Ten Strategies to Reduce Your Debt
www.moneycentral.msn.com/articles/smartbuy/debt/1330.asp
Mental Health
National
Register of Health Service Providers in Psychology
http://www.findapsychologist.org/
Motor
Neuron Disease
Motor
neurone diseases (or motor neuron diseases) (MND) are a group of progressive
neurological disorders that destroy motor neurones, the cells that control
voluntary muscle activity such as speaking, walking, breathing, and swallowing.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Motor_neurone_disease
ALS
Association
http://www.alsa.org/
ALS Forums
http://www.alsforums.com/
ALS Liga
Belgie
http://www.alsliga.be/
ALS Society of Canada
http://www.als.ca/
ALS Therapy Development Foundation
http://www.als.net/
Build-UK Chat Forums
http://www.magimedia.co.uk/buildforum/
International Alliance of ALS/MND Associations on the Internet
http://www.alsmndalliance.org/index.shtml
Motor Neuron Disease Association
http://www.mndassociation.org/index.html
MND Australia
http://www.mndaust.asn.au/
Project A.L.S.
http://www.projectals.org/
N
Neurology
American Neurological Association
www.aneuroa.org
The Cerebral Institute of Discovery
http://www.cerebral.org/
Post Trauma Treatment
www.post-trauma.com
Re-Cognition Brain Book
www.brainbook.com
Neurorehabilitation (see also Diagnosis and Treatment)
John Jane Brain Injury Center
http://www.jjbic.org/
Neuropsychology Homepage
www.tbidoc.com
News about Brain Injury Recovery
BBC News/Health
http://news.bbc.co.uk/1/hi/health/2653139.stm#top
Coma Recovery Association
http://www.comarecovery.org/articles.shtm
Nutrition
Nutrition Data
http://www.nutritiondata.com/index.html
The Vitamins and Nutrition Center
http://www.vitamins-nutrition.org/
Nursing
American Nurses Association
www.nursingworld.org
Nursing
Homes
Consumers Union Center for Consumer Health Choices
www.consumersunion.org/health/nursing
Medicare (nursing home checks)
www.medicare.gov/nhcompare/home.asp
Nutrition and Health
American Dietetic Association
www.eatright.org
Environmental Protection Agency (EPA), Safe Drinking Water Hotline www.epa.gov/safewater
Institute of Medicine of the National Academies—Dietary reference
www.iom.edu/iom/iomhome.nsf/pages/fnb+Dri?OpenDocument
Federal gateway
www.nutrition.gov
Food and Drug Administration (FDA)
www.fda.gov
International Bottled Water Association (ratings for contaminants) www.bottledwater.org
NSF International (consumer product testing)
www.nsf.org
US Department of Agriculture (food composition) www.nal.usda.gov/fnic/foodcomp
National Institutes of Health, Office of Dietary Supplements http://dietary-supplements.info.nih.gov/
P
Palsy, Progressive Supranuclear
PSP article,
HWHW, October 2006
Cure PSP-Society for Progressive Supranuclar Palsy (HWHW)
www.curepsp.org
PSP
Research Study (HWHW)
www.pspstudy.com
Parkinson’s Disease
Parkinson’s
Disease (also known as Parkinson Disease or PD) is a degenerative disorder of
the central nervous system that often impairs motor skills and speech. Some
forms of PD may result from toxicity, drugs, genetic mutation, head trauma or
other medical disorders.
-- Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Parkinson's_disease
American
Parkinson Disease Association
http://www.apdaparkinson.org/user/index.asp
European
Parkinson Disease Association
http://www.epda.eu.com/
National
Parkinson Foundation
http://www.parkinson.org
Parkinson
Society Canada
http://www.parkinson.ca/
Parkinson’s Disease Society
UK
http://www.parkinsons.org.uk/
Parkinson’s Disease Foundation
http://www.pdf.org/
Parkinson’s Action Network
http://www.parkinsonsaction.org/
Parkinson
Research Foundation
http://www.parkinsonresearchfoundation.org/
World
Parkinson Disease Association
http://www.wpda.org/
Hope for a
Cure
http://www.hopeforacure.org/
Partnership Between Patient and Caregiver
Co-Dependents Anonymous
www.codependents.org
Personal Assessment Tests
Coach
Referral Service (Counseling by a life coach)
866-802-2045
www.coachu.com
Personality traits
www.harrison-innerview.com
Human Edge
(assessment and coaching)
www.humanedgeinc.com
Coach Referral Service (Counseling by a life coach)
866-802-2045
www.coachu.com
Physical Therapy (see also, Training)
American Physical Therapy Association
www.apta.org
Emory University, School of Medicine, Division of Physical Therapy
Exercise Immunology Lab, Human Biomechanics Lab, Constraint Induced Lab,
Dizziness and Balance Center
http://www.rehabmed.emory.edu/pt/research.cfm
Prescription Drugs
Meds
of America (medical discounts)
www.medsofamerica.com
Worst Pills, Best
Pills (data base)
www.worstpills.org
Psychology and Counseling
American Association for Marriage and Family Therapy
http://www.aamft.org/index_nm.asp
American Board of Professional Psychology (Links to clinical neuropsychology and
behavioral psychology)
http://www.abpp.org/
American Counseling Association
http://www.counseling.org/index.html
American Psychological Association
www.apa.org,
http://www.apa.org/psychnet/
Authentic Happiness
http://www.authentichappiness.org/
Behavior
www.behavior.net
Dr. Phil McGraw
http://www.drphil.com/
International Association for Near-Death Studies
http://www.iands.org/
The International Coach Federation, 888-423-3131
www.coachfederation.org
Keirsey Character Sorter (Search keyword, Myers-Briggs)
http://www.keirsey.com
Laughter as medicine
http://www.isma.org.uk/stressnw/laughter.htm
Norman Vincent Peale Foundation
www.dailyguideposts.com
Pastoral counseling
http://www.proaxis.com/~jjefff/faq.html
Psychology information online
www.psychologyinfo.com
Physical Training and
Sports
Disabled Sports
http://www.dsusa.org/
R
Recreation
Family
Fun Magazine
http://familyfun.go.com/
Reference
Ask Me Help Desk
Live answers from real experts
www.AskMeHelpDesk.com
Clearinghouse of Neurology
www.neuroguide.com
Disability Services
www.disserv.stu.umn.edu
Doctor NET Online Brain Injury Links
http://comedserv.com
E-Journals
www.edoc.com/ejournal
The Free Dictionary (of
medical, legal, computer, financial terms and more)
www.thefreedictionary.com
The
Library of Congress
www.loc.gov
Films101:
Film titles organized by subject and more
www.films101.com
Google
Maps
http://maps.google.com
The How-to
Hunter
http://www.knowledgehound.com/
My
Wonderful World: National Geographic
www.mywonderfulworld.org
The Public Broadcasting System: Reference to background information
www.pbs.org
Published
articles archive
www.findarticles.com
Smithsonian Institution
www.si.edu
10x10: An
hourly updated snapshot of the world
www.tenbyten.org
Wikipedia:
Collaborative encyclopedia
www.wikipedia.org
Who’s who
personality database
www.nndb.com
Internet
Movie Database
www.imdb.com
Famous
Quotes at Quotedb
www.quotedb.com
Rehabilitation and Recovery
http://www.brain.com/
National Rehabilitation Information Center
http://www.naric.com/
ReMed Brain Injury Rehabilitation
http://www.remed.com/AdminHome.asp?ArticleID=257
Research Reports
American Heart Association published research on stroke
http://stroke.ahajournals.org/
S
Self Help
American Self-Help Group Clearinghouse (referrals to self-help
organizations world wide)
www.mentalhelp.net/selfhelp
I-Can online community for people with disabilities
http://www.icanonline.net/
Internet support
groups
www.healthfinder.gov
Internet self-help support groups
www.selfhelpgroups.org
Self-Help
Clearinghouse
http://www.selfhelpgroups.org/
Senior Resources
Resources for seniors
http://www.seniorssearch.com/
American Association of Retired Persons
www.aarp.org
American Institute of Financial Gerontology
www.aifg.org
Local agencies on aging
www.eldercare.gov
National Association of Elder Law Attorneys
www.naela.org
National Association of Professional Geriatric Care Managers www.caremanager.org
Shopping Online
Catalog of
catalogs
http://catalogs.google.com
·
Shopping Site Search Engines—Robots
(Bots)
(Best rated sites first)
BizRate Shopping Search
www.BizRate.com
PriceGrabber.Com
www.pricegrabber.com
NexTag
www.nextag.com
my Simon
www.mysimon.com
PriceScan.Com
www.pricescan.com
Shopping.Com
www.shopping.com
Target
http://www.target.com/gp/homepage.html/602-8242378-5583021
Shopping Aids
AntiRebate:
Provides instant rebates, coupon codes, price breaks, free stuff, etc.
www.antirebate.com
Etsy:
Marketplace for creators and consumers of homemade crafts.
www.etsy.com
Private
Way: Discreet direct delivery of drugstore items
www.PrivateWay.com
Zunafish:
Swap books, CDs, etc.
www.zunafish.com
Social Security
Social Security Administration
800-772-1213
Disability benefits programs
http://www.ssa.gov/disability
Office of Employment Support Programs
Helps people with disabilities enter the workforce in employment or
self-employment
www.ssa.gov/work
Spinal Cord Injury
SCI-INFO-PAGES
http://www.sci-info-pages.com/index.html
Stroke
Stroke, also
known as cerebrovascular accident (CVA), is an acute neurological injury in
which the blood supply to a part of the brain is interrupted. That is, a stroke
involves the sudden loss of neuronal function due to disturbance in cerebral
perfusion. This disturbance in perfusion is commonly arterial, but can be
venous.
-- Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Stroke
A Resource Center for Clinicians, Families and Survivors of Stroke
www.strokehelp.com
American Heart Association/American Stroke Association (search engine)
http://www.americanheart.org/presenter.jhtml?identifier=1200000
Canadian Stroke Network
http://www.canadianstrokenetwork.ca/
Stroke
Engine
http://www.medicine.mcgill.ca/strokengine/
American
Stroke Association
http://www.strokeassociation.org/presenter.jhtml?identifier=1200037
Bioness, Inc
http://www.bionessinc.com/products.aspx
Brain Injury Association of
Queensland
http://www.biaq.com.au/
National Institutes of Health, National Institute of Neurological
Disorders and Stroke
http://www.ninds.nih.gov/
National Stroke Association
http://www.stroke.org/site/PageServer?pagename=home&JServSessionIdr001=kbv6fdu451.app2b
Post stroke help
www.poststrokehelp.com
The Stroke
Association UK
http://www.stroke.org.uk/
National
Stroke Association of Malaysia
http://www.nasam.org/
Stroke Association
www.strokesocal.org
Stroke Awareness
www.strokesafe.org
Stroke Family
www.strokefamily.org
Stroke Group
www.thestrokegroup.com
Stroke Network
www.strokenetwork.org
Stroke Recovery Association of Hamilton Wentworth, Ontario, Canada
www.strokerecovery.org
Stroke Center at Washington University in St Louis
www.strokecenter.org
Stroke Recovery Systems
http://www.neuromove.com/index.html
Taub Therapy Clinic,
University of Alabama at Birmingham Hospital
http://www.taubtherapy.com/
Support Groups and Communication Online
TLC CarePages
www.carepages.com
Brain Injury Association
www.braininjurymn.org/tbichat.htm
Busstop Support Links
www.busstop.net/support2a.html
Family Caregiver Alliance
The Caregiver Online Group
The Huntington's Disease and Movement Disorders Online Group
The LGBT Caring Community Online Support Group
The Link2Care Support Group
www.caregiver.org
to register for any of these groups
Family Village On-Line Discussion Groups
www.familyvillage.wissc.edu
ICQ Chat Rooms
http://greet.icq.com/
Java Chat Room
www.comarecover.org/chat.htm
Stroke Network
www.strokenet.org
TBI Chat Room
www.tbichat.org
Surgical Procedures
Brain
Source
http://brainsource.com
Brain and Neuro Surgery Information Center
www.brain-surgery.com
Your Surgery
www.yoursurgery.com
T
Taxes
IRS
www.irs.gov
AARP--Tax-Aide
888-227-7669
www.aarp.org/taxaide
National Association of Tax Practitioners
www.natptax.com
The American Institute of Certified Public Accountants
www.aicpa.org
Tax information
http://govspot.com
● State and Local taxes
Federation of Tax Administrators
www.taxadmin.org
Tax and Accounting Sites Directory
www.taxsites.com/state.html
State Taxes—offices and assistance resources
www.taxsites.com/state.html
Technology
Electronics cnet.com
www.electronics.cnet.com
ShopNow
www.internetmall.com
Tek Discount Warehouse
www.tekgallery.com
Refurbished electronic products
www.refurbdepot.com
Telephone Directories
411 Locate
www.411locate.com
Addresses.Com
www.addresses.com
Alumni locator
www.alumni.net
AT&T AnyWho Info
www.anwho.com
Bigfoot
www.bigfoot.com
Telephone directory international
www.teldir.com/eng/
WorldPages
www.wolrldpages.com
YellowPages
www.yellowpages.com
Testing and Assessment
Real Age: The Real Age Test
http://www.realage.com/
Thanatology
Thanatological Education and Resource Center
www.tearcenter.com
Therapy
American Horticultural Therapy Association
http://www.ahta.org/
Tourette
Syndrome
Tourette
Syndrome (also called Tourette’s syndrome, Tourette’s disorder, Gilles de la
Tourette syndrom, GTS or, more commonly, simply Tourette’s or TS) is an
inherited neurological disorder with onset in childhood, characterized by the
presence of multiple physical (motor) tics and at least one vocal (phonic) tic;
these tics characteristically wax and wane. Tourette’s is defined as part of a
spectrum of tic disorders, which includes transient and chronic tics.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Tourette_syndrome
Tourette
Syndrom: Minimizing Confusion
http://www.tourette-confusion.blogspot.com/
Tourette
Syndrom “Plus”
http://www.tourettesyndrome.net/
Training
●
Constraint-Induced
Movement Therapy
Emory University, School of Medicine, Rehabilitation Medicine, Physical Therapy
http://www.rehabmed.emory.edu/pt/research_constraint_induced_lab.cfm
University of Alabama at Birmingham
CI Therapy Research Group
http://www.taubtherapy.com/show.asp?durki=30488
● Retraining the Brain
Brain Gym
http://www.braingym.org/about.html
Taub Therapy Clinic,
University of Alabama at Birmingham Hospital
http://www.taubtherapy.com/
Michael Merzenich, PhD
University of California San Francisco
http://www.ucsf.edu/neurosc/faculty/neuro_merzenich.html
Posit Science
http://www.positscience.com/
Transmissible
Spongiform Encephalopathies
Transmissible spongiform encephalopathies (TSEs, also known as prion diseases)
are a group of progressive conditions that affect the brain and nervous system
of humans and animals and are transmitted by prions. Mental and physical
abilities deteriorate and myriad tiny holes appear in the cortex causing it to
appear like a sponge (hence “spongiform”) when brain tissue obtained at autopsy
is examined under a microscope. The disorders cause impairment of brain
function, including memory changes, personality changes and problems with
movement that worsen over time. Prion diseases of humans include classic
Creutzfeldt-Jakob Disease, new variant Creutzfeldt-Jakob Disease (a human
disorder related to mad cow disease, Gerstmann-Straussler-Scheinker syndrome,
fatal insomnia and kuru. These conditions form a spectrum of diseases with
overlapping signs and symptoms.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Transmissible_spongiform_encephalopathy
Traumatic Brain Injury
Traumatic brain injury (TBI), traumatic injuries to the brain, also called
intracranial injury, or simply head injury, occurs when a sudden trauma causes
brain damage.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Traumatic_brain_injury
A medical, legal and informational resource for persons dealing with TBI
http://www.braininjury.com/
A Place to Share
http://www.tbichat.org/
Behind the Gray
http://www.behindthegray.net/home/
The Brain Injury Resource Foundation
http://www.birf.info/
International Brain Injury Association
http://www.internationalbrain.org/
Subtle
Brain Injury
http://www.subtlebraininjury.com/
TBI Information,
University of Virginia
http://curr.edschool.virginia.edu
TBI Model Systems
www.tbindc.org
TBI National Data Center
http://www.tbindc.org/
TBI Research and Publications Registry
www.tbindc.org
TBI Survival Guide by Dr Glen Johnson, Clinical Neuropsychologist
www.tbiguide.com
TBI Resource Directory
www.tbi-sci.org/tbird
TPN Resource Listings
www.tbi.org
TBI
Technical Assistance Center
http://www.tbitac.org/
Traumatic Brain Injury Resource guide
www.tbims.org
TBI Resource Guide
www.neuroskills.com
TBI Resources
http://busboy.sped.ukan.edu
Violence and Brain Injury Institute
http://www.vbii.org/
Virtual Hospital
http://vh.org
Travel
Airfare
Watchdog: Identifies lowest fares
www.airfarewatchdog.com
Amtrak
Interactive Route Atlas
www.amtrak.com (click on “Routes”)
Family Campers and RVrs
Where strangers become friends and friends become family
http://www.fcrv.org/
Free RV
Camping
How and where to camp for free with an RV in the USA
www.campgrounds.com
Good Sam Club
http://www.goodsamclub.com/
Campground
Links
Directory of Campground links and listings
www.campgroundinfo.com
Sperling’s
Best Places: Information about cities and towns
www.bestplaces.net
·
Adventure/Educational Travel
http://away.com
·
Assistance
CyberCafes
www.netcafes.com
Luggage Express—Pick-up/delivery service
866-744-7224
www.usxpluggageexpress.com
Virtual-Bellhop—Pick-up/delivery
877-235-5467
www.virtuualbellhop.com
·
Extended Stay Accomodations
Villa
Leisure—rentals in Europe, Hawaii,
Caribbean and Mexico
800-526-4244
www.villaleisure.com
Residence Inn by Marriot
800-331-3131
www.residenceinn.com
Staybridge Suites by Holiday Inn
800-238-8000
www.staybridge.com
Extended Stay
America
800-398-7829
www.extendedstay.com
Homestead
Suites
888-782-9473
www.homesteadhotels.com
AmeriSuites
800-833-1516
www.amerisuites.com
·
Farm Vacations:
Pennsylvania
Farm Vacation Association
888-856-6622
www.pafarmstay.com
Vermont Farm
Association
800-837-6668
www.vermontfarms.org
·
Frequent-Stay Plans
Frequent
stay plans of 6,000 hotels
www.triprewards.com
·
Health resources
Centers
for Disease Control and Prevention (CDC)
www.cdc.gov/travel
Travel Health Online
www.tripprep.com
International Society of Travel Medicine
www.istm.org
International SOS
www.sosinternational.com
·
Home Exchange:
Home exchange for persons over 50
www.seniorshomeexchange.com
HomeExchange.Com
www.HomeExchange.com
International Home Exchange Network
www.ihen.com
Home Exchanges Worlwide
www.holswap.com
Global Home Exchange
www.4homex.com
·
Hospitality Exchange
Affordable Travel Club
www.aabletravelclub.net
253-858-2172
www.hospex.net
406-538-8770
Evergreen Bed & Breakfast
www.evergreenclub.com
800-962-2392
ElderTravelers.Org
www.eldertravelers.org
Servas
www.usservas.org
212-267-0252
Lesbian and Gay Hospitality Exchange International
www.lghei.org
Women Welcome Women World Wide
www.womenwelcomewomen.org.uk
203-866-4774
·
Disability Friendly Facilities
American Camping Association (adults and children)
www.acacamps.org/
Great Outdoor Recreation Pages
www.gorp.com
International Association for Medical Assistance to Travelers
716-754-4883
www.iamat.org
Volunteer
Opportunities
Hands On Network
Be the Change.Volunteer.
Michelle Nunn, Be the Change! Change the World. Change Yourself –provides case
histories.
http://www.handsonnetwork.org/
Volunteer Resources
Random Acts of Kindness
www.actsofkindness.org
Volunteer Vacations
Amizade
www.amizade.org
Cross-Cultural Solutions
www.crossculturalsolutions.org
Elderhostel Services Programs
www.elderhostel.org/pprogramms/services.asp
Global
Service Corps
www.globalservicecorps.org
Global
Volunteers
www.globbalvolunteers.org
Globe
Aware
www.globeaware.org
United
Planet
www.unitedplanet.org
W
Wellness
American Council on Exercise (Find a Health Pro)
www.acefitness.org
Ask Dr. Weil
www.askdrweil.com
Dr. Koop
www.drkoop.com
Hatha Yoga, Yoga Synergy
www.yogasynergy.com.au
Health Central
www.healthcentral.com
Health Gate
www.healthgate.com
International Longevity Center
International Longevity Center
www.ilcusa.org
Just Move (American Heart Association)
www.justmove.org
Real Age
www.realage.com
Shape Up America
www.shapeup.org
Stay Healthy
www.stayhealthy.com
Step by Step Yoga Postures
www.santosha.com/asanas/
Total Fitness Guide (find a trainer)
www.totalfitnessguide.com
WebMD, family medicine website
www.webmd.com
Wellness Junction
www.wellnessjunction.com
Wellness Web
www.wellnessweb.com
Wellness Wise Electronic Journal
www.fermi.jhuapl.edu/wej/ww_intro.html
Women’s Health and Advocacy
Center for Women Policy
Studies, an independent, national, multiethnic, and multicultural feminist
policy, research, and advocacy institution founded in 1972. Conducts studies
and advocacy on women’s health, poverty and disabilities.
www.CenterWomenPolicy.org
Centers for Disease Control
Office of Women’s Health
http://www.cdc.gov/women/
Center on Human Policy, Law, and Disability Studies
Women and Disabilities
http://disabilitystudies.syr.edu/resources/organizations.aspx
Judge David L. Bazelton Center for Mental Health Law
http://www.bazelon.org/links/nat_advocates.htm
Medline Plus: Women’s Health Topics
U.S. National Library of Medicine
National Institutes of Health
http://www.nlm.nih.gov/medlineplus/womenshealth.html
National Disability Rights Network
http://www.ndrn.org/
The
National Women’s Health Information Center
U.S. Department of Health and Human Services
Office on Women’s Health
http://www.4woman.gov/topics.cfm
Patient
Advocacy Resources,
to assist
consumers in becoming advocates for their own health.
http://library.uchc.edu/departm/hnet/advocacy.html
Rehabilitation Institute of
Chicago,
LIFE Center
http://lifecenter.ric.org/index.cgi
Women’s Issues
The
Business Women’s Network Interactive
www.bwni.com
Oxygen
www.oxygen.com
Sports Illustrated for Women
www.sportsillustrated.cnn.com/siwomen/
Work at Home
● Home-based call center
through legitimate, established, Outsourcing firms (The Wall Street Journal)
Alpine Access
http://www.alpineaccess.com/external/index.html
LiveOps
http://www.liveops.com/
west Corporation
http://www.west.com/
Working Solutions
http://www.workingsolutions.com/home.htm
Work on the Road
Workamper.com - The online home of Workamper News
www.workamper.com