SELF HELP RECOVERY

Recovery Beyond Medicine

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RESOURCES FOR LONG-TERM RECOVERY

AND INDEPENDENT LIVING

 The largest caregivers/case managers/independent living directory on the internet

 

Purpose and Objective of the Directory

The purpose of the Self Help Resources directory is to identify free and affordable resources for recovery from brain injury and other catastrophic illness.  Websites are included in the directory based on referrals and recommendations made by users and consumers of the resources for long-term recovery.  Recommendations for websites to be included in the Directory should be sent to: selfhelprecovery@usa.net Websites establishing a reciprocal link with the Caregivers Directory may add information to their Directory listing by sending an email to selfhelprecovery@usa.net.

The main focus of the caregivers directory is on the "post-rehabilitation (T3)" or long-term phase
of recovery which, in the case of head injury, can take up to 20 years.  A 1998 Nationa Institutes of Health “Consensus Development Conference” on the topic Rehabilitation of Persons with Traumatic Brain Injury found that most approaches to TBI rehabilitation involve a traditional medical perspective.   The conference concluded that “A major limitation within the field of TBI rehabilitation is the narrow focus of current medical restoration approaches [and]  There is little recognition that TBI is frequently a lifetime disability with varying rehabilitation needs over that lifetime.

The conference found that “major financial barriers make access to TBI rehabilitation services difficult for many individuals.” 

. . . current approaches frequently result in a sense of disenfranchisement due to a lack of shared participation in goal development and program design. In addition, information provided by clinicians to persons with TBI and their families is often insufficient.

The conference views apply as well to closed-head injury (acquired brain injury) and catastrophic illness in general. 

For a summary of the conference statement go to Recovery--Part II, Rehabilitation.  For the complete NIH conference statement go to  http://consensus.nih.gov/1998/1998TraumaticBrainInjury109html.htm

All of the listings in this directory are linked to their corresponding websites.  After visiting a website, press the back button to return to the Directory.

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Index
Go to subject listings by clicking on red letter link.

A
Accreditation and Certification
Acquired Brain Injury

Advocacy
● Child Advocacy
● Health
● Women
Aging
Alzheimer's Disease
Aneurysm
Anoxia/Hypoxia
Aphasia
Assessment, Testing
Assistive Technologies 

B
Boating (power boating and sailing)
Brain
Brain Cancer
Brain and Central Nervous System Disorders
Brain Damage from Alcohol and Drug Use
Brain Studies
Brain Tumor 

C
Caregiving, Caregiver Resources
Caregiver Training
Charitable Organizations
Case Management in Home
Chemobrain
Children’s Resources
Clinical Trials
Comedy and Entertainment
Complementary and Alternative Medical Research and Treatment
Complementary and Alternative Medicine Information
Computer Applications 

D
Dementia
Depression
Developmental Disabilities
Discounts and Promotions
Diagnosis and Treatment
Disabilities

E
Education
● College Courses/Distance Learning
● College Programs for Students with Disabilities
● Educational Programs
● Educational Software
● Internet Learning
 

Employment Opportunities
● Job Searching Over 50
● Seasonal Jobs
● Self Employment
● Volunteer Opportunities
Epilepsy
 

F
Family Development
Financial Assistance for People With Disabilities
● County Health Department
Financial Assistance for Prescription Drugs
Financial Benefits--Government
Financial Services
Fitness, Physical Therapy and Exercise
Freebies on Line
● Free Books 

G
Games and Puzzles
Grieving
Gulf War Syndrome 

H
Headache
Health and Advocacy
Health Newsletters
Healthcare References
Home Healthcare Support
Hospice, Death and Dying
Hospitals

I
Income development, Grants and business startup
Incontinence
Independent Living
●Centers
●Resources
Internet Shopping 

J
Job Training 

L
Law
● Durable Power of Attorney
Leukodystrophy 

M
Magazines and Newsletters--websites
Massage
Medical Diagnosis and Treatment
Medical Referrals
Medical Records
Medical Tests
Medicare
Memory Enhancement
Mental Health
Money Matters 
Motor Neuron Disease

N
Neurology
Neurorehabilitation
News about Head Injury Recovery
Nursing
Nursing Homes
Nutrition and Health 

P
Parkinson's Disease
Partnership Between Patient and Caregiver
Personal Assessment Tests
Physical Therapy
Prescription Drugs
Physical Training and Sports
Psychology and Counseling 

R
Rehabilitation and Recovery
Rehabilitation and Recovery Programs
Recreation
Relocation Resources                              
Research Reports 

S
Self Help
Senior Resources
Social Security
Stroke
Support Groups and Communication Online
Surgical Procedures 

T
Taxes
Technology
Telephone Directories
Thanatology
Therapy
Tourette Syndrome
Training
Transmissible Spongiform Encephalopathies
Traumatic Brain Injury
Travel
 ● Extended Stay Hotels/Motels
 ● Farm Vacations
 ● Hospitality Exchange
 ● House Swapping  

V
W
Wellness
Women’s Issues

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Directory Listings

A
Accreditation and Certification

Commission on Accreditation of Rehabilitation Facilities
http://www.carf.org/default.aspx

The Joint Commission on Accreditation of Healthcare Organizations 
http://www.jcaho.org/

National Association of Boards of Pharmacy (Reviews and approves pharmacy websites)
www.nabp.net

The National Committee for Quality Assurance (NCQA)
http://www.ncqa.org/index.htm
 

Acquired Brain Injury
A neurological condition, Acquired Brain Injury (ABI) is damage to the brain after birth. It usually affects cognitive, physical, emotional or independent functioning and can result from traumatic brain injury (i.e. accidents, falls, assaults, etc.) and non-traumatic brain injury (i.e. stroke, brain tumours, infection, poisoning, hypoxia, ischemia or substance abuse). Most definitions of ABI exclude neurodegenerative disorders. Acquired brain injury is not to be confused with intellectual disability. People with a brain injury may have difficulty controlling, coordinating and communicating their thoughts and actions but they usually retain their intellectual abilities. Brain injury has dramatically varied effects and no two people can expect the same outcome or resulting difficulties. The brain controls every part of human life: physically, intellectually, behaviorally and emotionally. When the brain is damaged, some other part of a person's life will also be adversely affected. Even a mild injury can result in a serious disability that will interfere with a person’s daily functioning and personal activities for the rest of their life. While the outcome of the injury depends largely on the nature and severity of the injury itself, appropriate treatment will play a vital role in determining the level of recovery.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Acquired_brain_injury

Brain Injury Association of Queensland
Fact Sheets
http://www.biaq.com.au/factsheets.htm

Advocacy
AARP--Issues and Elections

http://www.aarp.org/issues/

American Bar Association (pro bono legal services)
www.abanet.org/soc/probono/pip.html

ABA--state directory of programs
www.abanet.org/legalservices/probono/directory.html

American Civil Liberties Union (legal services)
www.aclu.org

American with Disabilities Act
http://www.usdoj.gov/crt/ada/adahom1.htm

ADA—Document Center
http://janweb.edu

Center for Medicare Advocacy, Inc (legal assistance for  elderly and disabled people who have been denied coverage—free to Connecticut residents, fee required for others)
www.medicareadvocacy.org

The Arc of the United States
http://www.thearc.org/

The Center for Patient Advocacy (counseling and publications on patients rights)
800-846-7444
www.patientadvocacy.org

Congress of the US (help with cases and actions in government agencies)
www.house.gov or www.senate.gov.

HALT: Americans for Legal Reform (Legal self-help)
http://www.halt.org/index.php

· Child Advocacy
Wrightslaw
www.wrightslaw.com

Health Insurance Counseling and Advocacy Program (HICAP)
Centers for Medicare & Medicaid Services.  Check with your state Department on Aging, State Insurance Commissioner’s office or the Eldercare Locator hotline: 800-677-1116

The Judge Bazelon Center for Mental Health Law
www.bazelon.org

Leapfrog Group (Evaluation of hospital standards of treatment and billing)
www.leapfroggroup.org

Legal Services Corporation (free legal advice and assistance)
www.lsc.gov
e-mail: info@lsc.gov
state locator: www.lssc.gov/fundprog.htm

National Association for Homecare
www.nahc.org

National Patient Safety Foundation
http://www.npsf.org/

National Self-Help Clearinghouse (referrals to self-help groups nationwide)
www.selfhelpweb.org

Office of the Federal Privacy Commissioner, Federal Privacy Law
http://www.privacy.gov.au/act/

People's Medical Society
www.peoplesmed.org

Public Citizen Health Research Group
www.citizen.org/hrg/

Quackwatch
www.quackwatch.com

The Agency for Healthcare Research and Quality  (help yourself avoid medical injuries)
www.ahrq.gov/consumer/20tips.htm

● State Insurance Commissioner (your state): Health insurance disputes, State Medical Board (your state): Medical service disputes including billing

Consumers Union—Getting Action: How to Petition Government and Get Results
www.consumersunion.org


Aging
U.S Department of Health and Human Services, Administration on Aging
http://www.aoa.dhhs.gov/

American Federation for Aging Research
www.infoaging.org

Aging Solutions Inc: Elder Care and Advocacy Services
www.eldercarehelp.com


Alzheimer’s Disease
Alzheimer’s Disease (AD), also known simply as Alzheimer’s, is a neurodegenerative disease characterized by progressive cognitive deterioration together with declining activities of daily living and neuropsychiatric symptoms or behavioral changes.  It is the most common type of dementia.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Alzheimer%27s_disease

The Alzheimer’s Store
www.alzstore.com

Alzheimer’s Society
www.alz.org

Alzheimers Caregiver Resources
www.alzheimerscaregiverresources.com

Fisher Center for Alzheimer Research Foundation
http://www.alzinfo.org/

The Forgetting
http://www.randomhouse.com/features/forgetting/caregiver.html

National Institute on Aging
http://www.nia.nih.gov/Alzheimers/Publications/resourcelist.htm


Aneurysm
An aneurysm (or aneurism) is localized, blood-filled dilation (bulge) of a blood vessel caused by disease or weakening of the vessel wall.  Aneurysms most commonly occur in arteries at the base of the brain (the circle of Willis) and in the aorta (the main artery coming ut of the heart)—this is an aortic aneurysm.  This bulge in a blood vessel can burst and lead to death at any time, buch like a bulge in an over-inflated innertube.  The larger an aneurysm becomes, the more likely it is to burst.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Aneurysm

Aneurysm information
http://www.columbia.edu/~mdt1/


Aneurysm support and message board
http://www.westga.edu/~wmaples/aneurysm.html

Brain-Aneurysm.com
http://www.brain-aneurysm.com/

Brain-Surgery.us
http://www.brain-surgery.us/index.html


Brain Aneurysm Foundation
http://www.bafound.org/index.htm


Anoxia/Hypoxia
Hypoxia is a pathological condition in which the body as a whole (generalised hypoxia) or region of the body (tissue hypoxia) is deprived of adequate oxygen supply.  Hypoxia in which there is complete deprivation of oxygen supply is referred to as anoxia.
--Wikipedia, the free encylopedia
http://en.wikipedia.org/wiki/Anoxia


Aphasia

Aphasia (or aphemia) is a loss or impairment of the ability to produce and/or comprehend language due to brain damage.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Aphasia

American Speech-Language-Hearing Association
http://www.asha.org/public/speech/disorders/Aphasia_info.htm

National Aphasia Association
http://www.aphasia.org/

Stroke Family Speech Recovery Kits
http://www.strokefamily.org/


Assessment, Testing

Positive Psychology Network
Evaluation of psychological strengths
www.authenntichappiness.org

Information  on interpreting test results
www.labtestsonline.org


Assistive Technologies
Brain Injury Association of America (Assistive Technologies) http://www.biausa.org/Pages/AT/

Wireless Foundation (for used cell phones)
www.wirelessfoundation.org

Associations
International Brain Injury Association
http://www.internationalbrain.org/index.php
 

B
Boating
Sailing Aboard Recovery Foundation
www.sailrecovery.org

Chesapeake Region Accessible Boating
http://www.crab-sailing.org/

Brain
Brain function and products for performance enhancement
www.brain.com

Brain Cancer
Medline Plus
http://www.nlm.nih.gov/medlineplus/braincancer.html

Brain and Central Nervous System Disorders
Parkinson’s, Alzheimer’s and other  brain-centered diseases
http://www.brainnet.org/
 

Brain Damage from Alcohol and Drug Use
Brain damage is a common and potentially severe consequence of long-term, heavy alcohol consumption. Even mild-to-moderate drinking can adversely affect cognitive functioning.
--About: Alcoholism and Substance Abuse—For more coverage:
http://alcoholism.about.com/od/brain/Brain_Damage_and_Alcohol_Consumption.htm

Brain Injury
Acquired brain injury
http://www.methodisthealth.com/rehab/braininj.htm

Acquired brain injury information
http://www.headwest.asn.au/infokit.htm

Brain Injury Association of
America
http://www.biausa.org/Pages/home.html


Brain Injury Society
http://www.bisociety.org/

Brain Injury Resource Center
http://www.headinjury.com/

Medline Plus--health information
http://www.nlm.nih.gov/medlineplus/headandbraininjuries.html

Mental health
http://www.mentalhelp.net/

University of Iowa Virtual Hospital 
http://www.vh.org/adult/patient/neurosurgery/braininjury/index.html

American Brain Tumor Association
http://www.tbiguide.com/


Brain Plasticity
Brain Gym

http://www.braingym.org/about.html

Vanderbilt Kennedy Center for Research on Human Development
http://kc.vanderbilt.edu/kennedy/research/topics/plasticity.html

Posit Science
http://www.positscience.com/


Brain Studies
The Cerebral Institute of Discovery
www.cerebral.org

Neurological studies
www.cnsonline.org
 

Brain Tumor
A brain tumor is any inracranial tumor created by abnormal and uncontrolled cell division, normally either found in the brain itself (neurons, gllial cells, astrocytes, oligodendrocytes, ependymal cells), lymphatic tissue, blood vessels; in the cranial nerves (myelin-producing Schwann cells); in the brain envelopes (meninges), skull, pituitary and pineal gland; or spread from cancers primarily located in other organs (metastic tumors).  Primary (true) brain tumors are commonly located in the posterior cranial fossa in children and in the anterior two-thirds of the cerebral hemispheres in adults, although they can effect any part of the brain.
--Wikipedia, the free encyclopedia

http://en.wikipedia.org/wiki/Brain_tumor

American Brain Tumor Association
http://hope.abta.org/site/PageServer

Pediatric Brain Tumor Association
http://www.pbtfus.org/

National Brain Tumor Foundation
http://www.braintumor.org/

Brain-Surgery.us
http://www.brain-surgery.us/

The Brain Tumor Foundation
http://www.braintumorfoundation.org/

Brain Tumor Society
http://www.tbts.org/

www.childhoodbraintumor.org

Brain Tumor Association
www.abta.org

Pediatric Brain Tumor Association
http://www.pbtfus.org/


Business Assistance and Information

Small business information
www.entrepreneur.com


C
Cancer
Memorial Sloan-Kettering Cancer Center
www.mskcc.org

Oncolink, University of Pennsylvania Cancer Center
www.oncolink.upenn.edu

Caregiving, Caregiver Resources
Administration on Aging
http://www.aoa.gov

Brownson's Nursing Notes
http://members.tripod.com/~DianneBrownson/passages.html

Caregiver Resource Centers
California Department of Mental Health
http://www.dmh.cahwnet.gov/CRC/default.asp

Center to Advance Palliative Care
http://www.capc.org/finding-palliative-care-services/

Family Caregiver Alliance
http://www.caregiver.org/caregiver/jsp/home.jsp


Hospice Center International, Caregiver Resources
http://hospiceinternational.com/caregiver.htm

Lotsa Helping Hands
http://www.lotsahelpinghands.com/


National Alliance for Caregiving
http://www.caregiving.org/

National Family Caregivers Association
http://www.nfcacares.org/


National Caregivers Library
www.caregiverslibrary.org/

Net of Care: Information and Resources for Caregivers
www.netofcare.org

National Parkinson Foundation: Caregivers' Forum
www.parkinsonscare.com


Senior Approved Services
http://www.seniorsapprove.com/caregivers.html

WebMD
http://www.webmd.com/solutions/sc/caregiving


Caregiving Locator
Caregivers-USA
http://caregivers-usa.org/
 
 

Caregiving Resources
…And Thou Shalt Honor
http://www.thoushalthonor.org/

Christopher and Dana Reeve Paralysis Resource Center
www.paralysis.org

National Family Caregiver Support Program

http://www.aoa.gov/prof/aoaprog/caregiver/caregiver.asp

Everyday Warriors

www.everydaywarriors.com 

The International Center for Disability Resources on the Internet
www.icdri.org

National Family Caregiver Association
http://www.thefamilycaregiver.org

The National Private Duty Association (NPDA)
www.privatedutyhomecare.org

Resources for Caregivers
http://www.makoa.org/caregiver.htm


Caregiver’s Resource

http://www.caregiversresource.com/index.htm

Well Spouse Foundation
www.wellspouse.org

Working Caregiver
www.workingcaregiver.com

 

Case Management
●Aging
National Association of Geriatric Care Managers
http://www.caremanager.org/

● Health Care
Visiting Nurse Associations of America
http://www.vnaa.org/vnaa/g/?h=html/home

● Social Work
National Association of Social Workers
In thousands of ways, social workers help people help themselves.
http://www.helpstartshere.org/home.html


Caregiver Training

Center for Caregiver Training
http://www.caregiving101.org/index.asp

The Home Care Companion
http://www.homecarecompanion.com/

CareGuide
http://www.coordinatedcare.com/Careguide/index.jsp

Caregiving
www.caregiving.com

AARP, Caregiving
http://www.aarp.org/families/caregiving/

Centers for Medicaid and Medicare Services
http://cms.hhs.gov

Communicating with kids
Public Broadcasting System
www.pbs.org/parents

Family Caregiver Alliance
www.caregiver.org/

National Alliance for Caregiving (Independent Caregiver Directory)
www.caregiving.org

National Association for Homecare
www.nahc.org

National Family Caregivers Association
http://www.nfcacares.org/

Web resources for caregivers
www.caregiver.org

Partnership for Caring
202-296-8071
www.partnershipforcaring.org



Case Management and Consulting

Expert information
www.allexperts.com

Charitable Organizations
Nonprofit organizations rated acceptable by the Better Business Bureau
Wise Giving Alliance
www.give.org

Alzheimer's Association
www.alz.org

American Brain Tumor Association
(formerly: Association for Brain Tumor Research)
www.abta.org

American Health Assistance Foundation
www.ahaf.org

American Heart Association/American Stroke Association
www.americanheart.org

Brain Tumor Foundation of America/National Brain Tumor Foundation
www.braintumor.org

Epilepsy Foundation
www.epilepsyfoundation.org

National Alliance for Autism Research
www.naar.org

National Alliance for Research on Schizophrenia and Depression
www.narsad.org

NAMI/National Alliance for the Mentally Ill
www.nami.org

National Parkinson Foundation
www.parkinson.org

Parkinson's Disease Foundation
www.pdf.org


Chemobrain
http://www.breastcancer.org/chemo_cognitive.html


Right Health
http://www.righthealth.com/health/chemo--brain-s

Researchers Verify ‘Chemo Brain’ in Cancer Survivors
American Cancer Society
http://www.cancer.org/docroot/NWS/content/NWS_1_1x_Researchers_Verify_%E2%80%98Chemo_Brain%E2%80%99_in_Cancer_Survivors.asp


Children’s Resources
Animaland
www.animaland.org

BrainEvent
www.brainevent.com/be

Cartoon Network
www.cartoonetwork.com

The Children’s Literature Web Guide
http://www.ucalgary.ca/~dkbrown/index.html  

Cyberhaunts for Kids
www.freenet.hamilton.on.ca/-aa937/profile

Cyberkids
www.cyberkids.com

Dr. Seuss, Seussville
www.randomhouse.com/seussville

Fun Brain
www.funbrain.com

International Resources for Special Children
www.irsc.org

Kaitlyn’s Knock-Knock Jokes and Riddles
http://www.geocities.com/kaitlynbayne/jokes.htm 

Kids Health
www.kidshealth.org

Starbright Foundation
www.starbright.org

Traumatic Brain Injury in Infants and Toddlers
http://barkley.uni.edu/tbi

VICNET
www.vicnet.net.au/vicnet/kids/youthnet.htm

Volcano World
www.volcano.und.nodak.edu

Wild World of Wonka
www.wonka.com

Youth and Children’s Resource
www.child.net


Clinical Trials
NIH Protocols, Linking Patients to Research
http://www.clinicaltrials.gov/

National Institutes of Health, National Library of Medicine www.Clinicaltrials.gov 


Comedy and Entertainment
Comedy Central
www.comedycentral.com

The Internet Movie Database
www.imdb.com

Movie Clichés List
www.moviecliches.com


Complementary and Alternative Medical Research and Treatment
Bastyr University
www.bastyr.edu

Beth Israel Medical Center, NY
www.healthandhealingny.org

Harvard University, Osher Center for alternative Medicine Research and Education
www.bidmc.harvard.edu/medicine/camr

Minneapolis Medical Research Foundation, Center for Addiction and Alternative Medicine Research (CAAMR) www.mmrffweb.org/caamrpages

Münchener Modell
www.lrz-muenchen.de

Research Council for Complementary Medicine (RCCM) www.gn.apc.org/rccm

Stanford University, Center for Research in Disease Prevention, Complementary and Alternative Medicine Program at Stanford (CAMPS)
www.camps.stanford.edu

University of California Irvine, Susan Samueli Center for Complementary and Alternative Medicine
www.ucihs.uci.edu/com/samueli

University of California San Francisco, Osher Center for Integrative Medicine
www.ucsf.edu/ocim

University of Texas
M.D. Anderson Cancer Center Complementary Therapy Reviews
www.mdanderson.org


Complementary and Alternative Medicine Information
Canadian Natural Health Products Directorate
www.hc-sc.gc.ca/hpb/onhp/welcome_e.html

National Cancer Institute, Office of Cancer and complementary and Alternative Medicine
www.cancer.gov/occam/ 

National Cancer Institute, clinical trials
www.nci.nih.gov/

Health Well
www.healthwell.com

The National Center for Complementary and Alternative Medicine (NCCAM)
www.nccam.nih.gov/

National Institutes of Health, Clinical Trials, Alternative Medicine
www.clinicaltrials.gov/

New York Online Access to Health
www.noahhealth.org

Prevention Magazine
http://Healthyideas.com

The Rosenthal Center
www.cpmcnet.columbia.edu/dept/rosenthal/

The University of Pittsburgh
www.pitt.edu/~cbw/internet.html

The Homeopathic Academy of Naturopathic Physicians
www.healthy.net/hanp

American Association of Naturopathic Physicians
www.naturopathic.org

Mind/Body Medical Institute
866-509-0732
www.mbmi.org

National Institutes of Health Office of Dietary Supplements
301-435-2920
http://dietarysupplements.info.nih.gov


Computer Applications
Access Quality Toys Birthday Reminder www.accessqualitytoys.com/birthday.cfm

Accesing the Internet
www.faqs.org/faqs/internet-services

Free E-Mail Address (and other services) Directory
www.emailaddresses.com

Remind Me!
www.cartsupport.com/admin/reminders.asp

Talking Email
www.4developers.com/talkmail/


Cooking
Cooking by Numbers: begins by asking what you have on hand
www.cookingByNumbers.com

 

D
Dementia
Dementia and other diseases review
www.thedoctorslounge.net

Mental health resources
http://www.mentalhelp.net/



Depression
Dealing with depression
www.depress.com

Depressed Child
www.depressedchild.org

Depression
www.depression.org

Depression, Symptoms and Treatments www.members.aol.com/ckrps/healthllynx/depression.html

Depression Alliance
www.depressionalliance.org

Depression and Anxiety
www.emedchart.com

Depression Awareness
www.familyaware.org

Depression Help
www.helpdepression.com

Depression Net
www.depressionnet.com.au

Depressive illness
www.cyberview-usa.com

National Depressive and Manic-Depressive Association
www.ndmda.org

Developmental Disability
Developmental disability is a term used to describe severe, life-long disabilities attributable to mental and/or physical impairments, manifested before the age of 22. …Usually people with mental retardation, cerebral palsy, autism spectrum disorder, various genetic and chromosomal disorders such as Down syndrome and Fragile X syndrome, and fetal alcohol syndrome are described as having developmental disabilities.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Developmental_disabilities


US Department of Health and Human Services
Administration for Children & Families
http://www.acf.hhs.gov/programs/add/


National Center on Birth Defects and Developmental Disabilities
http://www.cdc.gov/ncbddd/



Diagnosis and Treatment
AARP LifeAnswers (professional consultation on health issues) www.aarp.org/lifeanswers

Best Neuroscience Website http://uscneurosurgery.com/links/best_neuroscience_links.htm

Electro diagnostic Medicine
www.aaem.net

Neurosurgery
www.neurosurgery-neff.com

Canadian Neurological
www.cjns.org

Deep vein thrombosis (DVT)
http://www.dvt.net/ 

Glasgow Coma Score
http://www.trauma.org/scores/gcs.html

Nerve injury
www.nerve-injury.com

Neural signals
www.neuralsignals.com

Neurology
www.neurology.org

Brain Helper
http://www.brainhelper.com/

MRI screening
http://www.brainscans.com/

Health Evidence Bulletins
http://hebw.uwcm.ac.uk/mental/chap3.html

Dementia and other diseases review
www.thedoctorslounge.net

Postgraduate Medicine Online
http://www.postgradmed.com/index.htm

Medical checklist of procedures http://www.anesthesia.lsumc.edu/Neuro/Manual/aneurysm.htm

Medline information encyclopedia
http://www.nlm.nih.gov/medlineplus/ency/article/003019.htm#Definition

Trauma, emergency and intensive care neurosurgery index  http://www.bgsm.edu/bgsm/surg-sci/ns/trauma.html

Wake Forest University Baptist Medical Center
http://www.bgsm.edu/


Disabilities
DisabilityInfo.Gov
http://www.disabilityinfo.gov/

US Department of Education
http://www.ed.gov/offices/OSERS/

Yourable.com—Products and services for people with disabilities
www.disabilitynet.co.uk/

An online community for people with disabilities of all types
www.icanonline.net/

Learning Disabilities Association of America
www.idanatl.org



E
Education
College Costs article BLP, November 1, 2006
National Institute of Certified College Planners
www.niccp.com

Programs for Students with Disabilities
Aish HaTorah, Jewish educational centers (BLP)
www.aish.com

Association on Higher Education and Disability
www.ahead.org/

Community Colleges
www.search4communitycolleges.com

Brains are Fun
www.brainsarefun.com/

Internet Learning
The Sloan Consortium (500 leading US colleges and universities)
www.sloan-c.org

World Wide Learn (directory)
www.worldwidelearn.com

Search course description on-line
Middle States Commission on Higher Education
215-662-5606
www.msache.org

The Higher Learning Commission of the North Central Association of  Colleges and Schools
312-263-0456
www.ncahigherlearningcommission.org

Northwest Commission on Colleges and Universities
425-558-4224
www.nwccu.org

Southern Association of Colleges and Schools
404-679-4500
www.sacscoc.org

Western Association of Schools and Colleges
415-506-0234
www.accjc.org

Educational Programs
Summer educational programs
www.petersons.com/summerop

· Educational Software
Braintainment Center
www.brain.com

Brain Train
www.brain-train.com

AARP
www.aarp.org/nrta/learning

Barnes & Noble University
www.barnesandnobleuniversity.com
 

Educational References
Bartleby.com -- Great Books Online
www.Bartleby.com

 

Employment Opportunities
● At-Home Employment

● Job Search
http://www.vocationvacations.com/

● Job Searching Over 50
Pathways/OI Partners--Professional effectiveness
www.oipartners.net/pathways

American Camping Association
Summer and Year-round Jobs
http://www.acacamps.org/

AARP—list of top companies for older workers
www.aarp.org/bestemployers
www.aarp.org/careers

US Administration on Aging
www.aoa.gov

US Equal Employment Opportunitiy Commission
www.eeoc.gov

Guide to career resources
www.job-hunt.org

Seasonal Employment
www.coolworks.com

SummerJobs.com
www.summerjobs.com

Self Employment
National Association of Real Estate Investors
www.nationalreia.com

Angel Investors
http://www.angelcapitaleducation.org/

● Volunteer Resources
Random Acts of Kindness
www.actsofkindness.org

Volunteer opportunities
www.aarp.org

Volunteer Match (clearinghouse)
www.volunteermatch.org

Volunteer America (clearinghouse)
www.volunteeramerica.net

Global Volunteers (clearinghouse)
www.globalvolunteers.org

The Time Dollar Institute
www.timedollar.org


Epilepsy
Epilepsy Foundation
www.efa.org/


F
Family Development
Family fun
www.funology.com

Financial Assistance for People with Disabilities
American Camping Association
Camperships (scholarships)
http://www.acacamps.org/

The Abilities Fund
www.abilitiesfund.org

American Academy of Ophthalmology
National Eye Care Project (65 and older)
www.aao.org

American Optometric Association, VISION USA
www.aoanet.org

Lions Clubs International Foundation
www.lcif.org

American Cancer Society
www.cancer.org

Easter Seals
www.easterseals.org

Benefits checkup--provides a summary of about 1,000 national and local benefits programs.  Sponsored by the National Council of the Aging with support from AARP, drug companies and others.
http://www.benefitscheckup.org/

Catholic Charities USA (child care, elder care, etc.)
www.catholiccharitiesusa.org

Children’s Health Insurance Program (CHIPS) (free health insurance)
877-543-7669 (hotline state locator)
www.insurekidsnow.gov

County Health Department (your county): free or partial payment health services based on ability to pay.

Disability Rights Education and Defense Fund, Inc (DREDF) (hotline)
www.dredf.org

Federal Citizen Information Center
www.firstgov.gov

Health Resources and Services Administration, US Department of Health and Human Services—Hill-Burton Hotline (free hospitalization)
800-638-0742, 800-492-0359
www.hrsa.gov/osp/dfcr/about/aboutdiv.htm

Medicaid (free health insurance for people with disabilities who work) or Medicare Hotline: 800-633-4227
www.medicaid.gov

Medicare (supplemental payment, see Guide to Health Insurance for People With Medicare) or Medicare Hotline: 800-633-4227
www.medicare.gov/publications/pubs/pdf/guide.pdf

National Foundation of Dentistry for the Handicapped (free dental care) (also check local dental school  programs)
www.nfdh.org

National Immunization Information Hotline (free immunizations)
800-232-0233
www.cdc.gov/nip

National Institutes of Health Clinical Center (patient recruitment) www.cc.nih.gov

Computer Retrieval of Information on Scientific Projects, Office of Reports and Analysis, Division of Extramural Outreach and Information Resources
www.commons.cit.nih.gov/crisp  or 301-435-0656

Octameron Associates (Federal student loan and grant finder)
www.octameron.com

Office of Housing Assistance and Grants Administration, US Department of Housing and Urban Development (funds for housing for people with disabilities, program 14.157)
www.hud.gov

● Office of Vocational Rehabilitation or Office of Economic Development (state)

Pharmaceutical Research and Manufacturers of America (hotline) www.pharma.org or 800-PMA-INFO

Rehabilitation Engineering and Assistive Technology (technical assistance and financial support)
www.resna.org

Rehabilitation Services Administration, US Department of Education (grants to businesses that employ people with disabilities) www.ed.gov/offices/OSERS/RSA

Rural Housing Service, US Department of Agriculture (buy or fix up a home)
www.rurdev.usda.gov/rhs/index.html

State and local Rural Housing Service offices
www.nahro.org  and www.comcon.org

Salvation Army (help with child care, elder services, etc.) www.Salvationarmyusa.org

Social Security Administration (Supplemental Security Income (SSI); Social Security Disability Income (SSDI)
http://www.ssa.gov/

State information offices (insert state abbreviation)
www.state.md.us


Financial Assistance for Prescription Drugs
Medicare—State Assistance Programs
800-633-4227
www.medicare.gov

Veterans Health Administration
Department of Veterans Affairs
877-222-8387
www.va.gov

Medicare Rights Center—list of drug discount programs
www.medicarerights.org

Internet pharmacies and prices
www.destinationrx.com


Financial Benefits--Government
Your Benefits Connection [to federal and state government]
http://www.govbenefits.gov/govbenefits_en.portal


Financial Resources for Seniors
Department of Housing and Urban Development (HUD)
http://www.hud.gov/groups/seniors.cfm

Reverse Mortgage
http://www.reversemortgagelenders.org/


Financial Services
American Association of Daily Money Managers
www.aadmm.com

Pay Trust, Complete Bill Management
www.paytrust.com

Status Factory, pay bills online
www.statusfactory.com

National Financial Planning Support Center
Find a planner
www.fpanet.org

 

Fitness
American Senior Fitness Association
www.seniorfitness.org

National Institute on Aging (exercising for older people)
www.nia.nih.gov/exercisebook

About Walking
www.walking.about.com

Aerobics and Fitness Association
www.afaa.com

Fitness Online
www.fitnessonline.com

Fitness Resource
www.sickbay.com/netsweat/

Muscle Physiology
www.muscle.ucsd.edu

National Institute on Aging
www.aoa.gov//aoa/pages/agepages/exercise.html

World Fitness Online
www.worldfitness.org


Fitness, Physical Therapy and Exercise
Constraint-induced movement therapy
http://www.stroke-info.com/cimt.htm

Constraint-induced movement therapy--A Clinical Review
http://www.vard.org/jour/99/36/3/taub363.htm

Exercise Council
www.acefitness.org

Shape Up America
www.shapeup.org

Workouts for You
www.workoutsforyou.com

Freebies on Line
www.bestdealsontheweb.net

www.coolfreebielinks.com

www.fabfree.com

www.freebies.about.com

● Free books
www.gutenberg.net

www.books-on-line.com

www.bibliomania.com

www.digital.library.upenn.edu/books

www.paperbackswap.com

www.frugalreader.com

G
Games and Puzzles
Ariel’s Simpsons Trivia Quiz www.geocities.com/athens/1530/simmptriv.html

Boxerjam
www.boxerjam.com

Case’s Ladder, Multiplayer Gaming League
www.igl.net

Chinook (checkers)
www.cs.ualberta.ca/-chinook/

The Daily 100 (80s movie trivia) www.80s.com/entertainment/movies/daily100/

FreeArcade
www.12.freearcade.com

GameGeezers
http://www.gamegeezers.com/forum/

MSN Game Zone
www.zone.msn.com

Old Grandma Hard Core
http://oghc.blogspot.com/

The Ultimate Oracle: Pray Before the Head of Bob
www.resort.com/-banshee/misc/8ball/

Welcome to Faces
www.corynet.com/faces/

World Village Games
www.worldvillage.com/wvgames/index.html

WWW Interactive Online Crossword
www.uclick.com/client/pil/ec/


Government Agencies
State and Local Government on the Net
www.statelocalgov.net


Grieving
GriefNet