RESOURCES FOR LONG-TERM RECOVERY
AND INDEPENDENT LIVING
The largest caregivers/case managers/independent living directory on the internet
Purpose and Objective of the Directory
The purpose
of the Self Help Resources directory is to identify free and affordable resources for recovery from
brain injury and other catastrophic illness. Websites are
included in the directory based on referrals and recommendations made
by users and consumers of the resources for long-term recovery. Recommendations for websites to be included in
the Directory should be sent to:
selfhelprecovery@usa.net.
Websites
establishing a reciprocal link with the Caregivers Directory may
add information to their Directory listing by
sending an email to
selfhelprecovery@usa.net.
The main focus of the caregivers directory is on the "post-rehabilitation (T3)"
or long-term phase
of recovery which, in the case of head injury, can take up to 20 years. A 1998 Nationa Institutes
of Health “Consensus Development Conference” on the topic Rehabilitation of
Persons with Traumatic Brain Injury found that
most approaches to TBI rehabilitation involve a traditional
medical perspective. The conference concluded that “A
major limitation within the field of TBI rehabilitation is the narrow focus of
current medical restoration approaches [and] There is little recognition that
TBI is frequently a lifetime disability with varying rehabilitation needs over
that lifetime.
The conference found that “major financial barriers make access to TBI rehabilitation services difficult for many individuals.”
. . . current approaches frequently result in a sense of disenfranchisement due to a lack of shared participation in goal development and program design. In addition, information provided by clinicians to persons with TBI and their families is often insufficient.
The conference views apply as well to closed-head injury (acquired brain injury) and catastrophic illness in general.
For a summary of the conference statement go to Recovery--Part II, Rehabilitation. For the complete NIH conference statement go to http://consensus.nih.gov/1998/1998TraumaticBrainInjury109html.htm
All of the
listings in this directory are linked to their
corresponding
websites. After visiting a website, press the back button
to return to the
Directory.
____________________________________________________________________
Index
Go to subject listings by
clicking
on red letter link.
A
Accreditation and Certification
Acquired Brain Injury
Advocacy
● Child Advocacy
● Health
● Women
Aging
Alzheimer's Disease
Aneurysm
Anoxia/Hypoxia
Aphasia
Assessment, Testing
Assistive Technologies
B
Boating (power boating and sailing)
Brain
Brain Cancer
Brain and Central Nervous System Disorders
Brain Damage from Alcohol and Drug Use
Brain Studies
Brain Tumor
C
Caregiving, Caregiver Resources
Caregiver Training
Charitable Organizations
Case Management in Home
Chemobrain
Children’s Resources
Clinical Trials
Comedy and Entertainment
Complementary and Alternative Medical Research and Treatment
Complementary and Alternative Medicine Information
Computer Applications
D
Dementia
Depression
Developmental Disabilities
Discounts and Promotions
Diagnosis and Treatment
Disabilities
E
Education
● College Courses/Distance Learning
● College Programs for Students with Disabilities
● Educational Programs
● Educational Software
● Internet Learning
Employment Opportunities
● Job Searching Over 50
● Seasonal Jobs
● Self Employment
● Volunteer Opportunities
Epilepsy
F
Family Development
Financial Assistance for People With Disabilities
● County Health Department
Financial Assistance for Prescription Drugs
Financial Benefits--Government
Financial Services
Fitness, Physical Therapy and Exercise
Freebies on Line
● Free Books
G
Games and Puzzles
Grieving
Gulf War Syndrome
H
Headache
Health and Advocacy
Health Newsletters
Healthcare References
Home Healthcare Support
Hospice, Death and Dying
Hospitals
I
Income development, Grants and
business startup
Incontinence
Independent Living
●Centers
●Resources
Internet Shopping
J
Job Training
L
Law
● Durable Power of Attorney
Leukodystrophy
M
Magazines and Newsletters--websites
Massage
Medical Diagnosis and Treatment
Medical Referrals
Medical Records
Medical Tests
Medicare
Memory Enhancement
Mental Health
Money Matters
Motor Neuron Disease
N
Neurology
Neurorehabilitation
News about Head Injury Recovery
Nursing
Nursing Homes
Nutrition and Health
P
Parkinson's Disease
Partnership Between Patient and Caregiver
Personal Assessment Tests
Physical Therapy
Prescription Drugs
Physical Training and Sports
Psychology and Counseling
R
Rehabilitation and Recovery
Rehabilitation and Recovery Programs
Recreation
Relocation Resources
Research Reports
S
Self Help
Senior Resources
Social Security
Stroke
Support Groups and
Communication Online
Surgical Procedures
T
Taxes
Technology
Telephone Directories
Thanatology
Therapy
Tourette Syndrome
Training
Transmissible Spongiform Encephalopathies
Traumatic Brain Injury
Travel
● Extended Stay Hotels/Motels
● Farm Vacations
● Hospitality Exchange
● House Swapping
V
W
Wellness
Women’s Issues
_________________________________________________________________________________
Directory Listings
Accreditation and Certification
Commission on Accreditation of Rehabilitation Facilities
http://www.carf.org/default.aspx
The
Joint Commission on Accreditation of Healthcare Organizations
http://www.jcaho.org/
National Association of Boards of Pharmacy (Reviews and approves pharmacy
websites)
www.nabp.net
The National Committee for Quality Assurance (NCQA)
http://www.ncqa.org/index.htm
Acquired Brain Injury
A
neurological condition, Acquired Brain Injury (ABI) is damage to
the brain after birth. It usually affects cognitive, physical, emotional or
independent functioning and can result from traumatic brain injury (i.e.
accidents, falls, assaults, etc.) and non-traumatic brain injury (i.e. stroke,
brain tumours, infection, poisoning, hypoxia, ischemia or substance abuse). Most
definitions of ABI exclude neurodegenerative disorders. Acquired brain injury is
not to be confused with intellectual disability. People with a brain injury may
have difficulty controlling, coordinating and communicating their thoughts and
actions but they usually retain their intellectual abilities. Brain injury has
dramatically varied effects and no two people can expect the same outcome or
resulting difficulties. The brain controls every part of human life: physically,
intellectually, behaviorally and emotionally. When the brain is damaged, some
other part of a person's life will also be adversely affected. Even a mild
injury can result in a serious disability that will interfere with a person’s
daily functioning and personal activities for the rest of their life. While the
outcome of the injury depends largely on the nature and severity of the injury
itself, appropriate treatment will play a vital role in determining the level of
recovery.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Acquired_brain_injury
Brain
Injury Association of Queensland
Fact Sheets
http://www.biaq.com.au/factsheets.htm
Advocacy
AARP--Issues and Elections
http://www.aarp.org/issues/
American Bar Association (pro bono legal services)
www.abanet.org/soc/probono/pip.html
ABA--state directory of programs
www.abanet.org/legalservices/probono/directory.html
American Civil Liberties Union (legal services)
www.aclu.org
American with Disabilities Act
http://www.usdoj.gov/crt/ada/adahom1.htm
ADA—Document Center
http://janweb.edu
Center for Medicare Advocacy, Inc (legal assistance for elderly and disabled
people who have been denied coverage—free to Connecticut residents, fee required
for others)
www.medicareadvocacy.org
The Arc of the United
States
http://www.thearc.org/
The Center for Patient Advocacy (counseling and publications on patients rights)
800-846-7444
www.patientadvocacy.org
Congress of the US (help with cases and actions in government agencies)
www.house.gov or
www.senate.gov.
HALT: Americans for Legal Reform (Legal self-help)
http://www.halt.org/index.php
·
Child Advocacy
Wrightslaw
www.wrightslaw.com
● Health Insurance Counseling and Advocacy Program (HICAP)
Centers for Medicare
& Medicaid Services. Check with your state Department on Aging, State Insurance
Commissioner’s office or the Eldercare Locator hotline: 800-677-1116
The Judge Bazelon Center for Mental Health Law
www.bazelon.org
Leapfrog Group (Evaluation of hospital standards of treatment and billing)
www.leapfroggroup.org
Legal Services Corporation (free legal advice and assistance)
www.lsc.gov
e-mail:
info@lsc.gov
state locator:
www.lssc.gov/fundprog.htm
National Association for Homecare
www.nahc.org
National Patient Safety Foundation
http://www.npsf.org/
National Self-Help Clearinghouse (referrals to self-help groups nationwide)
www.selfhelpweb.org
Office of the Federal Privacy Commissioner, Federal Privacy Law
http://www.privacy.gov.au/act/
People's Medical Society
www.peoplesmed.org
Public Citizen Health Research Group
www.citizen.org/hrg/
Quackwatch
www.quackwatch.com
The Agency for Healthcare Research and Quality (help yourself avoid medical
injuries)
www.ahrq.gov/consumer/20tips.htm
● State Insurance Commissioner (your state): Health insurance disputes, State
Medical Board (your state): Medical service disputes including billing
Consumers Union—Getting Action: How to Petition Government and Get Results
www.consumersunion.org
Aging
U.S
Department of Health and Human Services, Administration on Aging
http://www.aoa.dhhs.gov/
American Federation for Aging Research
www.infoaging.org
Aging Solutions Inc: Elder Care and Advocacy Services
www.eldercarehelp.com
Alzheimer’s
Disease
Alzheimer’s
Disease (AD), also known simply as Alzheimer’s, is a neurodegenerative disease
characterized by progressive cognitive deterioration together with declining
activities of daily living and neuropsychiatric symptoms or behavioral changes.
It is the most common type of dementia.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Alzheimer%27s_disease
The Alzheimer’s Store
www.alzstore.com
Alzheimer’s Society
www.alz.org
Alzheimers
Caregiver Resources
www.alzheimerscaregiverresources.com
Fisher
Center for Alzheimer Research Foundation
http://www.alzinfo.org/
The Forgetting
http://www.randomhouse.com/features/forgetting/caregiver.html
National Institute on
Aging
http://www.nia.nih.gov/Alzheimers/Publications/resourcelist.htm
Aneurysm
An aneurysm
(or aneurism) is localized, blood-filled dilation (bulge) of a blood vessel
caused by disease or weakening of the vessel wall. Aneurysms most commonly
occur in arteries at the base of the brain (the circle of Willis) and in the
aorta (the main artery coming ut of the heart)—this is an aortic aneurysm. This
bulge in a blood vessel can burst and lead to death at any time, buch like a
bulge in an over-inflated innertube. The larger an aneurysm becomes, the more
likely it is to burst.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Aneurysm
Aneurysm information
http://www.columbia.edu/~mdt1/
Aneurysm support and message board
http://www.westga.edu/~wmaples/aneurysm.html
Brain-Aneurysm.com
http://www.brain-aneurysm.com/
Brain-Surgery.us
http://www.brain-surgery.us/index.html
Brain Aneurysm Foundation
http://www.bafound.org/index.htm
Anoxia/Hypoxia
Hypoxia is
a pathological condition in which the body as a whole (generalised hypoxia) or
region of the body (tissue hypoxia) is deprived of adequate oxygen supply.
Hypoxia in which there is complete deprivation of oxygen supply is referred to
as anoxia.
--Wikipedia, the free encylopedia
http://en.wikipedia.org/wiki/Anoxia
Aphasia
Aphasia (or
aphemia) is a loss or impairment of the ability to produce and/or comprehend
language due to brain damage.
--Wikipedia,
the free encyclopedia
http://en.wikipedia.org/wiki/Aphasia
American Speech-Language-Hearing Association
http://www.asha.org/public/speech/disorders/Aphasia_info.htm
National Aphasia Association
http://www.aphasia.org/
Stroke Family Speech
Recovery Kits
http://www.strokefamily.org/
Assessment, Testing
Positive
Psychology Network
Evaluation of psychological strengths
www.authenntichappiness.org
Information on interpreting test results
www.labtestsonline.org
Assistive Technologies
Brain Injury Association of America (Assistive Technologies)
http://www.biausa.org/Pages/AT/
Wireless Foundation (for used cell phones)
www.wirelessfoundation.org
Associations
International Brain Injury Association
http://www.internationalbrain.org/index.php
B
Boating
Sailing Aboard Recovery Foundation
www.sailrecovery.org
Chesapeake Region Accessible Boating
http://www.crab-sailing.org/
Brain
Brain function and products for
performance enhancement
www.brain.com
Brain Cancer
Medline Plus
http://www.nlm.nih.gov/medlineplus/braincancer.html
Brain and Central Nervous System Disorders
Parkinson’s, Alzheimer’s and other brain-centered diseases
http://www.brainnet.org/
Brain
Damage from Alcohol and Drug Use
Brain damage
is a common and potentially severe consequence of long-term, heavy alcohol
consumption. Even mild-to-moderate drinking can adversely affect cognitive
functioning.
--About: Alcoholism and Substance Abuse—For more coverage:
http://alcoholism.about.com/od/brain/Brain_Damage_and_Alcohol_Consumption.htm
Brain Injury
Acquired brain injury
http://www.methodisthealth.com/rehab/braininj.htm
Acquired brain injury information
http://www.headwest.asn.au/infokit.htm
Brain Injury Association of
America
http://www.biausa.org/Pages/home.html
Brain
Injury Society
http://www.bisociety.org/
Brain Injury Resource Center
http://www.headinjury.com/
Medline
Plus--health information
http://www.nlm.nih.gov/medlineplus/headandbraininjuries.html
Mental health
http://www.mentalhelp.net/
University of Iowa
Virtual Hospital
http://www.vh.org/adult/patient/neurosurgery/braininjury/index.html
American Brain Tumor Association
http://www.tbiguide.com/
Brain Plasticity
Brain Gym
http://www.braingym.org/about.html
Vanderbilt Kennedy
Center for Research on Human Development
http://kc.vanderbilt.edu/kennedy/research/topics/plasticity.html
Posit Science
http://www.positscience.com/
Brain Studies
The Cerebral Institute of Discovery
www.cerebral.org
Neurological studies
www.cnsonline.org
Brain Tumor
A brain
tumor is any inracranial tumor created by abnormal and uncontrolled cell
division, normally either found in the brain itself (neurons, gllial cells,
astrocytes, oligodendrocytes, ependymal cells), lymphatic tissue, blood vessels;
in the cranial nerves (myelin-producing Schwann cells); in the brain envelopes (meninges),
skull, pituitary and pineal gland; or spread from cancers primarily located in
other organs (metastic tumors). Primary (true) brain tumors are commonly
located in the posterior cranial fossa in children and in the anterior
two-thirds of the cerebral hemispheres in adults, although they can effect any
part of the brain.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Brain_tumor
American
Brain Tumor Association
http://hope.abta.org/site/PageServer
Pediatric
Brain Tumor Association
http://www.pbtfus.org/
National
Brain Tumor Foundation
http://www.braintumor.org/
Brain-Surgery.us
http://www.brain-surgery.us/
The Brain
Tumor Foundation
http://www.braintumorfoundation.org/
Brain Tumor Society
http://www.tbts.org/
Brain Tumor Association
www.abta.org
Pediatric
Brain Tumor Association
http://www.pbtfus.org/
Business Assistance and Information
Small business
information
www.entrepreneur.com
C
Cancer
Memorial Sloan-Kettering Cancer Center
www.mskcc.org
Oncolink, University of Pennsylvania Cancer Center
www.oncolink.upenn.edu
Caregiving, Caregiver Resources
Administration on Aging
http://www.aoa.gov
Brownson's Nursing Notes
http://members.tripod.com/~DianneBrownson/passages.html
Caregiver Resource Centers
California Department of Mental Health
http://www.dmh.cahwnet.gov/CRC/default.asp
Center to Advance Palliative Care
http://www.capc.org/finding-palliative-care-services/
Family Caregiver Alliance
http://www.caregiver.org/caregiver/jsp/home.jsp
Hospice Center International, Caregiver
Resources
http://hospiceinternational.com/caregiver.htm
Lotsa Helping Hands
http://www.lotsahelpinghands.com/
National Alliance for Caregiving
http://www.caregiving.org/
National Family Caregivers Association
http://www.nfcacares.org/
National Caregivers Library
www.caregiverslibrary.org/
Net of Care: Information and Resources for Caregivers
www.netofcare.org
National Parkinson Foundation:
Caregivers' Forum
www.parkinsonscare.com
Senior Approved Services
http://www.seniorsapprove.com/caregivers.html
WebMD
http://www.webmd.com/solutions/sc/caregiving
Caregiving Locator
Caregivers-USA
http://caregivers-usa.org/
Caregiving Resources
…And Thou Shalt Honor
http://www.thoushalthonor.org/
Christopher and Dana Reeve Paralysis Resource Center
www.paralysis.org
National Family Caregiver Support Program
http://www.aoa.gov/prof/aoaprog/caregiver/caregiver.asp
Everyday Warriors
www.everydaywarriors.com
The International Center for Disability Resources on the Internet
www.icdri.org
National Family Caregiver Association
http://www.thefamilycaregiver.org
The
National Private Duty Association (NPDA)
www.privatedutyhomecare.org
Resources for Caregivers
http://www.makoa.org/caregiver.htm
Caregiver’s Resource
http://www.caregiversresource.com/index.htm
Well Spouse Foundation
www.wellspouse.org
Working Caregiver
www.workingcaregiver.com
Case
Management
●Aging
National Association of Geriatric Care Managers
http://www.caremanager.org/
● Health Care
Visiting Nurse Associations of America
http://www.vnaa.org/vnaa/g/?h=html/home
●
Social Work
National
Association of Social Workers
In
thousands of ways, social workers help people help themselves.
http://www.helpstartshere.org/home.html
Caregiver Training
Center for Caregiver Training
http://www.caregiving101.org/index.asp
The Home Care Companion
http://www.homecarecompanion.com/
CareGuide
http://www.coordinatedcare.com/Careguide/index.jsp
Caregiving
www.caregiving.com
AARP, Caregiving
http://www.aarp.org/families/caregiving/
Centers for Medicaid and Medicare Services
http://cms.hhs.gov
Communicating with kids
Public Broadcasting System
www.pbs.org/parents
Family Caregiver Alliance
www.caregiver.org/
National Alliance for Caregiving (Independent Caregiver Directory)
www.caregiving.org
National Association for Homecare
www.nahc.org
National Family Caregivers Association
http://www.nfcacares.org/
Web resources for caregivers
www.caregiver.org
Partnership for Caring
202-296-8071
www.partnershipforcaring.org
Case Management and
Consulting
Expert information
www.allexperts.com
Charitable Organizations
Nonprofit organizations rated acceptable by the Better Business Bureau
Wise Giving Alliance
www.give.org
Alzheimer's Association
www.alz.org
American Brain Tumor Association
(formerly: Association for Brain Tumor Research)
www.abta.org
American Health Assistance Foundation
www.ahaf.org
American Heart Association/American Stroke Association
www.americanheart.org
Brain Tumor Foundation of America/National Brain Tumor Foundation
www.braintumor.org
Epilepsy Foundation
www.epilepsyfoundation.org
National Alliance for Autism Research
www.naar.org
National Alliance for Research on Schizophrenia and Depression
www.narsad.org
NAMI/National Alliance for the Mentally Ill
www.nami.org
National Parkinson Foundation
www.parkinson.org
Parkinson's Disease Foundation
www.pdf.org
Chemobrain
http://www.breastcancer.org/chemo_cognitive.html
Right Health
http://www.righthealth.com/health/chemo--brain-s
Researchers
Verify ‘Chemo Brain’ in Cancer Survivors
American Cancer Society
http://www.cancer.org/docroot/NWS/content/NWS_1_1x_Researchers_Verify_%E2%80%98Chemo_Brain%E2%80%99_in_Cancer_Survivors.asp
Children’s Resources
Animaland
www.animaland.org
BrainEvent
www.brainevent.com/be
Cartoon Network
www.cartoonetwork.com
The Children’s Literature Web Guide
http://www.ucalgary.ca/~dkbrown/index.html
Cyberhaunts for Kids
www.freenet.hamilton.on.ca/-aa937/profile
Cyberkids
www.cyberkids.com
Dr. Seuss, Seussville
www.randomhouse.com/seussville
Fun Brain
www.funbrain.com
International Resources for Special Children
www.irsc.org
Kaitlyn’s Knock-Knock Jokes and Riddles
http://www.geocities.com/kaitlynbayne/jokes.htm
Kids Health
www.kidshealth.org
Starbright Foundation
www.starbright.org
Traumatic Brain Injury in Infants and Toddlers
http://barkley.uni.edu/tbi
VICNET
www.vicnet.net.au/vicnet/kids/youthnet.htm
Volcano World
www.volcano.und.nodak.edu
Wild World of Wonka
www.wonka.com
Youth and Children’s Resource
www.child.net
Clinical Trials
NIH Protocols, Linking Patients to Research
http://www.clinicaltrials.gov/
National Institutes of Health, National Library of Medicine www.Clinicaltrials.gov
Comedy and Entertainment
Comedy
Central
www.comedycentral.com
The Internet Movie Database
www.imdb.com
Movie Clichés List
www.moviecliches.com
Complementary and Alternative Medical Research and Treatment
Bastyr
University
www.bastyr.edu
Beth
Israel Medical Center,
NY
www.healthandhealingny.org
Harvard
University, Osher Center for alternative Medicine Research and Education
www.bidmc.harvard.edu/medicine/camr
Minneapolis Medical Research Foundation, Center for Addiction and Alternative Medicine Research (CAAMR) www.mmrffweb.org/caamrpages
Münchener Modell
www.lrz-muenchen.de
Research Council for Complementary Medicine (RCCM) www.gn.apc.org/rccm
Stanford University, Center for Research in Disease Prevention, Complementary
and Alternative Medicine Program at Stanford (CAMPS)
www.camps.stanford.edu
University of California Irvine,
Susan Samueli Center for Complementary and Alternative Medicine
www.ucihs.uci.edu/com/samueli
University of California San Francisco,
Osher Center for Integrative Medicine
www.ucsf.edu/ocim
University of Texas
M.D. Anderson Cancer Center Complementary Therapy Reviews
www.mdanderson.org
Complementary and Alternative Medicine Information
Canadian Natural Health Products Directorate
www.hc-sc.gc.ca/hpb/onhp/welcome_e.html
National Cancer Institute, Office of Cancer and complementary and Alternative
Medicine
www.cancer.gov/occam/
National Cancer Institute, clinical trials
www.nci.nih.gov/
Health Well
www.healthwell.com
The National Center for Complementary and Alternative Medicine (NCCAM)
www.nccam.nih.gov/
National Institutes of Health, Clinical Trials, Alternative Medicine
www.clinicaltrials.gov/
New York Online Access to Health
www.noahhealth.org
Prevention Magazine
http://Healthyideas.com
The
Rosenthal Center
www.cpmcnet.columbia.edu/dept/rosenthal/
The
University of
Pittsburgh
www.pitt.edu/~cbw/internet.html
The Homeopathic Academy of Naturopathic Physicians
www.healthy.net/hanp
American Association of Naturopathic Physicians
www.naturopathic.org
Mind/Body Medical Institute
866-509-0732
www.mbmi.org
National Institutes of Health Office of Dietary Supplements
301-435-2920
http://dietarysupplements.info.nih.gov
Computer Applications
Access
Quality Toys Birthday Reminder
www.accessqualitytoys.com/birthday.cfm
Accesing the Internet
www.faqs.org/faqs/internet-services
Free E-Mail Address (and other services) Directory
www.emailaddresses.com
Remind Me!
www.cartsupport.com/admin/reminders.asp
Talking Email
www.4developers.com/talkmail/
Cooking
Cooking by
Numbers: begins by asking what you have on hand
www.cookingByNumbers.com
D
Dementia
Dementia and other diseases review
www.thedoctorslounge.net
Mental
health resources
http://www.mentalhelp.net/
Depression
Dealing with depression
www.depress.com
Depressed Child
www.depressedchild.org
Depression
www.depression.org
Depression, Symptoms and Treatments www.members.aol.com/ckrps/healthllynx/depression.html
Depression Alliance
www.depressionalliance.org
Depression and Anxiety
www.emedchart.com
Depression Awareness
www.familyaware.org
Depression Help
www.helpdepression.com
Depression Net
www.depressionnet.com.au
Depressive illness
www.cyberview-usa.com
National Depressive and Manic-Depressive Association
www.ndmda.org
Developmental Disability
Developmental disability is a term used to describe severe, life-long
disabilities attributable to mental and/or physical impairments, manifested
before the age of 22. …Usually people with mental retardation, cerebral palsy,
autism spectrum disorder, various genetic and chromosomal disorders such as Down
syndrome and Fragile X syndrome, and fetal alcohol syndrome are described as
having developmental disabilities.
--Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Developmental_disabilities
US Department of Health and Human Services
Administration for Children & Families
http://www.acf.hhs.gov/programs/add/
National Center on Birth Defects and Developmental
Disabilities
http://www.cdc.gov/ncbddd/
Diagnosis and Treatment
AARP
LifeAnswers (professional consultation on health issues)
www.aarp.org/lifeanswers
Best Neuroscience Website
http://uscneurosurgery.com/links/best_neuroscience_links.htm
Electro diagnostic Medicine
www.aaem.net
Neurosurgery
www.neurosurgery-neff.com
Canadian Neurological
www.cjns.org
Deep vein thrombosis (DVT)
http://www.dvt.net/
Glasgow Coma Score
http://www.trauma.org/scores/gcs.html
Nerve
injury
www.nerve-injury.com
Neural signals
www.neuralsignals.com
Neurology
www.neurology.org
Brain Helper
http://www.brainhelper.com/
MRI screening
http://www.brainscans.com/
Health Evidence Bulletins
http://hebw.uwcm.ac.uk/mental/chap3.html
Dementia and other diseases review
www.thedoctorslounge.net
Postgraduate Medicine Online
http://www.postgradmed.com/index.htm
Medical checklist of procedures http://www.anesthesia.lsumc.edu/Neuro/Manual/aneurysm.htm
Medline information encyclopedia
http://www.nlm.nih.gov/medlineplus/ency/article/003019.htm#Definition
Trauma, emergency and intensive care neurosurgery index
http://www.bgsm.edu/bgsm/surg-sci/ns/trauma.html
Wake Forest
University Baptist Medical Center
http://www.bgsm.edu/
Disabilities
DisabilityInfo.Gov
http://www.disabilityinfo.gov/
US
Department of Education
http://www.ed.gov/offices/OSERS/
Yourable.com—Products and services for people with disabilities
www.disabilitynet.co.uk/
An online community for people with disabilities of all types
www.icanonline.net/
Learning Disabilities Association of America
www.idanatl.org
E
Education
College Costs
article BLP, November 1, 2006
National Institute of Certified College Planners
www.niccp.com
● Programs for Students with Disabilities
Aish HaTorah, Jewish
educational centers (BLP)
www.aish.com
Association on Higher Education and Disability
www.ahead.org/
Community Colleges
www.search4communitycolleges.com
Brains are Fun
www.brainsarefun.com/
●
Internet Learning
The Sloan Consortium (500 leading US colleges and universities)
www.sloan-c.org
World Wide Learn (directory)
www.worldwidelearn.com
● Search course description on-line
Middle States Commission on Higher Education
215-662-5606
www.msache.org
The Higher Learning Commission of the North Central Association of Colleges and
Schools
312-263-0456
www.ncahigherlearningcommission.org
Northwest Commission on Colleges and Universities
425-558-4224
www.nwccu.org
Southern Association of Colleges and Schools
404-679-4500
www.sacscoc.org
Western Association of Schools and Colleges
415-506-0234
www.accjc.org
● Educational Programs
Summer educational programs
www.petersons.com/summerop
· Educational
Software
Braintainment Center
www.brain.com
Brain Train
www.brain-train.com
AARP
www.aarp.org/nrta/learning
Barnes & Noble
University
www.barnesandnobleuniversity.com
Educational References
Bartleby.com -- Great
Books Online
www.Bartleby.com
Employment
Opportunities
● At-Home Employment
● Job Search
http://www.vocationvacations.com/
● Job
Searching Over 50
Pathways/OI
Partners--Professional effectiveness
www.oipartners.net/pathways
American Camping Association
Summer and Year-round Jobs
http://www.acacamps.org/
AARP—list of top companies for older workers
www.aarp.org/bestemployers
www.aarp.org/careers
US Administration on Aging
www.aoa.gov
US Equal
Employment Opportunitiy Commission
www.eeoc.gov
Guide to career resources
www.job-hunt.org
Seasonal Employment
www.coolworks.com
SummerJobs.com
www.summerjobs.com
● Self Employment
National Association of Real Estate Investors
www.nationalreia.com
Angel Investors
http://www.angelcapitaleducation.org/
● Volunteer Resources
Random Acts of Kindness
www.actsofkindness.org
Volunteer opportunities
www.aarp.org
Volunteer Match (clearinghouse)
www.volunteermatch.org
Volunteer
America
(clearinghouse)
www.volunteeramerica.net
Global Volunteers (clearinghouse)
www.globalvolunteers.org
The Time Dollar Institute
www.timedollar.org
Epilepsy
Epilepsy Foundation
www.efa.org/
F
Family Development
Family fun
www.funology.com
Financial Assistance
for People with Disabilities
American Camping Association
Camperships (scholarships)
http://www.acacamps.org/
The Abilities Fund
www.abilitiesfund.org
American Academy of Ophthalmology
National Eye Care Project (65 and older)
www.aao.org
American Optometric Association, VISION USA
www.aoanet.org
Lions Clubs International Foundation
www.lcif.org
American Cancer Society
www.cancer.org
Easter Seals
www.easterseals.org
Benefits checkup--provides a summary of about 1,000 national and local benefits
programs. Sponsored by the National Council of the Aging with support from
AARP, drug companies and others.
http://www.benefitscheckup.org/
Catholic Charities USA (child care, elder care, etc.)
www.catholiccharitiesusa.org
Children’s Health Insurance Program (CHIPS) (free health insurance)
877-543-7669 (hotline state locator)
www.insurekidsnow.gov
County Health Department (your county): free or partial payment health services based on ability to pay.
Disability Rights Education and Defense Fund, Inc (DREDF) (hotline)
www.dredf.org
Federal Citizen Information Center
www.firstgov.gov
Health Resources and Services Administration, US Department of Health and Human
Services—Hill-Burton Hotline (free hospitalization)
800-638-0742, 800-492-0359
www.hrsa.gov/osp/dfcr/about/aboutdiv.htm
Medicaid (free health insurance for people with disabilities who work) or
Medicare Hotline: 800-633-4227
www.medicaid.gov
Medicare (supplemental payment, see Guide to Health Insurance for People With
Medicare) or Medicare Hotline: 800-633-4227
www.medicare.gov/publications/pubs/pdf/guide.pdf
National Foundation of Dentistry for the Handicapped (free dental care) (also
check local dental school programs)
www.nfdh.org
National Immunization Information Hotline (free immunizations)
800-232-0233
www.cdc.gov/nip
National Institutes of Health Clinical Center (patient recruitment)
www.cc.nih.gov
Computer Retrieval of Information on Scientific Projects, Office of Reports and
Analysis, Division of Extramural Outreach and Information Resources
www.commons.cit.nih.gov/crisp or 301-435-0656
Octameron Associates (Federal student loan and grant finder)
www.octameron.com
Office of Housing Assistance and Grants Administration, US Department of Housing
and Urban Development (funds for housing for people with disabilities, program
14.157)
www.hud.gov
● Office of Vocational Rehabilitation or Office of Economic Development (state)
Pharmaceutical Research and Manufacturers of America (hotline) www.pharma.org or 800-PMA-INFO
Rehabilitation Engineering and Assistive Technology (technical assistance and
financial support)
www.resna.org
Rehabilitation Services Administration, US Department of Education (grants to businesses that employ people with disabilities) www.ed.gov/offices/OSERS/RSA
Rural Housing Service, US Department of Agriculture (buy or fix up a home)
www.rurdev.usda.gov/rhs/index.html
State and local Rural Housing Service offices
www.nahro.org and
www.comcon.org
Salvation Army (help with child care, elder services, etc.) www.Salvationarmyusa.org
Social Security Administration (Supplemental Security Income (SSI); Social
Security Disability Income (SSDI)
http://www.ssa.gov/
State information offices (insert state abbreviation)
www.state.md.us
Financial Assistance for Prescription Drugs
Medicare—State Assistance Programs
800-633-4227
www.medicare.gov
Veterans Health Administration
Department of Veterans Affairs
877-222-8387
www.va.gov
Medicare
Rights Center—list of drug discount programs
www.medicarerights.org
Internet pharmacies and prices
www.destinationrx.com
Financial Benefits--Government
Your Benefits Connection [to federal and state government]
http://www.govbenefits.gov/govbenefits_en.portal
Financial Resources for Seniors
Department of Housing and Urban Development (HUD)
http://www.hud.gov/groups/seniors.cfm
Reverse Mortgage
http://www.reversemortgagelenders.org/
Financial Services
American Association of Daily Money Managers
www.aadmm.com
Pay Trust,
Complete Bill Management
www.paytrust.com
Status Factory, pay
bills online
www.statusfactory.com
National Financial
Planning Support Center
Find a planner
www.fpanet.org
Fitness
American Senior Fitness Association
www.seniorfitness.org
National Institute on Aging (exercising for older people)
www.nia.nih.gov/exercisebook
About Walking
www.walking.about.com
Aerobics and Fitness Association
www.afaa.com
Fitness Online
www.fitnessonline.com
Fitness Resource
www.sickbay.com/netsweat/
Muscle Physiology
www.muscle.ucsd.edu
National Institute on Aging
www.aoa.gov//aoa/pages/agepages/exercise.html
World Fitness Online
www.worldfitness.org
Fitness, Physical Therapy and Exercise
Constraint-induced movement therapy
http://www.stroke-info.com/cimt.htm
Constraint-induced
movement therapy--A Clinical Review
http://www.vard.org/jour/99/36/3/taub363.htm
Exercise Council
www.acefitness.org
Shape Up America
www.shapeup.org
Workouts for You
www.workoutsforyou.com
Freebies on
Line
www.bestdealsontheweb.net
● Free
books
www.gutenberg.net
www.digital.library.upenn.edu/books
G
Games and Puzzles
Ariel’s Simpsons Trivia Quiz
www.geocities.com/athens/1530/simmptriv.html
Boxerjam
www.boxerjam.com
Case’s Ladder, Multiplayer Gaming League
www.igl.net
Chinook (checkers)
www.cs.ualberta.ca/-chinook/
The Daily 100 (80s movie trivia) www.80s.com/entertainment/movies/daily100/
FreeArcade
www.12.freearcade.com
GameGeezers
http://www.gamegeezers.com/forum/
MSN Game Zone
www.zone.msn.com
Old Grandma Hard Core
http://oghc.blogspot.com/
The Ultimate Oracle: Pray Before the Head of Bob
www.resort.com/-banshee/misc/8ball/
Welcome to Faces
www.corynet.com/faces/
World Village Games
www.worldvillage.com/wvgames/index.html
WWW Interactive Online Crossword
www.uclick.com/client/pil/ec/
Government Agencies
State and Local Government on the Net
www.statelocalgov.net
Grieving
GriefNet